Enhancing Research Collaboration Through a
Common Database for NIA Alzheimer’s Disease Centers

Specific Aims Faculty & Staff Committees (PDF)
Caring for Alzheimer's Links Donations
ADC Administrator Reports ADC Steering Committees (PDF) ADCs and ADRCs Personnel Directory ADC Administrator 's Manual Wiki ADC Newsletters Future ADC Meetings and other events Past Presentations NIA Biospecimen Best Practice Guidelines for the ADCs
Forms and Documentation Accessing NACC Data for Research Tissue Location Request UDS Neuropsych Tests Means Neuropsychiatry Work Group Publication Submission NACC-related Publications Sponsored Research Grant Submission
Forms and Documentation Data Bulletin Board UDS Monthly Reports Look up UDS DrugID UDS Submission NP Submission MDS Submission Centers Data Sets NP Inventory System Collaborative Projects NACC Supported R01s GWAS ID Phase 1 List & Summary GWAS ID Phase 2 List & Summary Training
Forms and Documentation Clinical Bulletin Board Print Completed UDS Data Forms Look up UDS DrugID Enter UDS Data Using E-forms Training

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Description of the NACC Database

The National Alzheimer's Coordinating Center's database consists of data collected from 29 Alzheimer's Disease Centers funded by the National Institute on Aging. The database consists of several datasets, and searches may be done on the entire database or on individual datasets. Access is granted by security level. For an explanation of security levels, click here.

  • The Minimum Data Set (MDS)
    • Brief, cross-sectional clinical and demographic data abstracted for subjects enrolled in NIA Alzheimer's Disease Centers 1984 - 2005.
  • The Uniform Data Set (UDS)
    • Standardized clinical examination, testing, diagnostic evaluation and data collection protocol with annual longitudinal follow-up. Implemented September 2005 and continuing.
  • Neuropathology Data Set (NP)
    • Neuropathologic features of subjects who had post-mortem neuropathological examination, 1984 - present. These data include those subjects with MDS and/or UDS clinical data.

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