Submit your data request

Please note that before receiving a data file you will be asked to acknowledge the NACC Data Use Agreement. You may do so now or after your request has been fully specified.

Please provide the information requested below, and then click Continue to submit the form. You will be contacted by a NACC staff member within two business days. Note that investigator name, institution, email address, title, abstract, and key words will be displayed on the Researchers page on the NACC website.

NACC cannot ensure that each data request and resulting data set are novel to the NACC database. It is the responsibility of the researcher, not NACC, to identify a unique research hypothesis and ensure that there is no significant overlap with other ongoing or published NACC data analyses.

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Contact information:

First name:
Last name:
Home institution:
Email address:
Phone number:
Are you affiliated with an ADC?

Is this an update of or addendum to a previous NACC data request?   No   Yes

If yes, please provide the name of the most recent file for which you are requesting an update:

Project title:

Brief project description: Specific aims

1) State concisely the goals of the proposed research and summarize the expected outcome(s), including the impact that the results of the proposed research will exert on the research field(s) involved.

2) List succinctly the specific objectives of the research proposed, e.g., to test a stated hypothesis, create a novel design, solve a specific problem, challenge an existing paradigm or clinical practice, address a critical barrier to progress in the field, or develop new technology. (Be specific regarding this particular request)

These aims will be posted for public access in the section of this website titled "Ongoing and Completed Research Using NACC Data."

Keyword selection:

From the options below, please select 3 to 5 keywords that describe your proposed research using NACC data. For a printable PDF of the keyword options, click here.


expand symbol Clinical diagnosis / suspected etiology / syndrome

Clinical diagnosis

Normal cognition


Alzheimer's disease / LOAD

Early onset AD

Pre-clinical / pre-symptomatic Alzheimer's disease

Mild cognitive impairment

Impaired, not mild cognitive impairment

Lewy body dementia

Frontotemporal dementia (FTD)

Vascular dementia

Primary progressive aphasia (PPA)

Huntington's disease

Prion disease

Parkinson's disease

Down syndrome

expand symbol Clinical measures and symptoms

Blood pressure

Height / weight

HIS and CVD / Hachinski ischemic score


Gait disturbance / tremor / other movement disorders

CDR / CDR global score / CDR sum of boxes

NPI-Q / neuropsychiatric symptoms

GDS / Geriatric Depression Scale / behavioral assessment

FAQ / functional impairment/functional decline

Neurological exam / focal deficit

Subjective memory complaint

Cognitive symptoms

Behavior symptoms

Motor symptoms

expand symbol Neuropsychological testing

Neuropsychological tests


Test norms


Composite scores

Test language

Dysexecutive function

expand symbol Demographics and characteristics





Primary language


Oldest old

Living situation / residence type

Family history of dementia

Informant demographics / characteristics

Differences by Center / region

expand symbol Subject health history

Vascular risk factors

Cardiovascular disease

Cerebrovascular disease / stroke / TIA


Seizures / epilepsy

Traumatic brain injury (TBI)







Sleep apnea

Psychiatric disorders


Age at onset of cognitive decline

expand symbol Neuropathology / death




Vascular pathology

Braak stage

Neuritic plaques

Lewy bodies


Frontotemporal lobar degeneration (FTLD)

Corticobasal degeneration (CBD)

Progressive supranuclear palsy (PSP)

Pick's disease

Hippocampal sclerosis

expand symbol Genetics and biomarkers




APP / PS1 / PS2 mutations

Other genetic mutations / chromosomal abnormalities


expand symbol Study design



Cognitive decline / transition

Statistical methods

ROC analysis

Missing data methods

Latent class modeling/factor analysis


Descriptive / exploratory

Clinicopathological/diagnostic accuracy

Risk factors

Survival analysis / prognosis

Clinical trial eligibility


Eligibility criteria:

Please specify the criteria used to define the population under study. For example, specify age limits or minimum neuropsychological scores. For UDS data, please indicate relevant time points (e.g., initial visit only, all visits etc.)

Data elements requested:

Please provide a list of the specific variables needed to address the stated aims, research questions or hypotheses. Electronic copies of data collection forms and data element dictionaries are available for the major NACC databases (see, and they should be examined carefully in compiling this list. Researchers are advised to be parsimonious in requesting data, limiting the list of variables requested to those clearly necessary to address the project's aims. For UDS data, please indicate relevant time points (e.g., initial visit only, >n visits, all visits, etc.).

Would you prefer a SAS or CSV file format?

Would you like to request magnetic resonance imaging files (MRIs) for analysis as part of this data request?  If Yes, NACC staff will contact you for specifications.

No   Yes

Would you like to talk to a NACC staff member about the data or your analysis plan?

How did you learn about NACC data? (Select all that apply)

  • Researcher or clinician affiliated with an ADC
  • Web search (If you linked from another site, please specify that site:)  
  • Conference
  • Friend or colleague
  • GAAIN (Global Alzheimer's Association Interactive Network)
  • Other (specify):  





Please contact NACC at 206-543-8637 or with any questions or concerns.