Submit your data request

Please provide the information requested below, and then click Continue to submit the form. You will be contacted by a NACC staff member within two business days. Note that investigator name, institution, email address, title, abstract, and key words will be displayed on the Researchers page on the NACC website.

NACC cannot ensure that each data request and resulting data set are novel to the NACC database. It is the responsibility of the researcher, not NACC, to identify a unique research hypothesis and ensure that there is no significant overlap with other ongoing or published NACC data analyses.

NACC confidentiality agreement

These data are to be used for informational purposes only. Any effort to determine the personal identity associated with any reported data is prohibited. Distribution or release of data or image files obtained from the National Alzheimer's Coordinating Center to third parties is prohibited. Data requests, analyses, and potential publications using the information contained in this database are subject to review by NACC and/or the NACC Steering Committee.

Downloading these data indicates that you accept the terms of this agreement:

  1. that you will maintain data confidentiality;
  2. that you will not distribute the data or image file to a third party; and
  3. that you will follow NACC publication guidelines (listed below) before seeking to publish results.

NACC publication guidelines

  • All publications, posters and presentations using NACC data must reference the NACC grant number,
    U01 AG016976.
  • All manuscripts and abstracts using NACC data must be submitted to NACC's Manuscript and Abstract Submission System for a brief administrative review prior to journal or conference submission.
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NACC DATA REQUEST FORM

Contact information:

First name:
Last name:
Address:
Home institution:
City:
State:
Zip:
Email address:
Phone number:

Is this an update of or addendum to a previous NACC data request?   No   Yes

If yes, please provide the name of the most recent file for which you are requesting an update:

Project title:

Brief project description including specific aims:

This abstract will be posted for public access in the section of this website titled "Ongoing and Completed Research Using NACC Data."

Keyword selection:

From the options below, please select 3 to 5 keywords that describe your proposed research using NACC data. For a printable PDF of the keyword options, click here.

 

expand symbol Clinical diagnosis / suspected etiology / syndrome

Clinical diagnosis

Normal cognition

Dementia

Alzheimer's disease / LOAD

Early onset AD

Pre-clinical / pre-symptomatic Alzheimer's disease

Mild cognitive impairment

Impaired, not mild cognitive impairment

Lewy body dementia

Frontotemporal dementia (FTD)

Vascular dementia

Primary progressive aphasia (PPA)

Huntington's disease

Prion disease

Parkinson's disease

Down syndrome

expand symbol Clinical measures and symptoms

Blood pressure

Height / weight

HIS and CVD / Hachinski ischemic score

UPDRS/parkinsonism

Gait disturbance / tremor / other movement disorders

CDR / CDR global score / CDR sum of boxes

NPI-Q / neuropsychiatric symptoms

GDS / Geriatric Depression Scale / behavioral assessment

FAQ / functional impairment/functional decline

Neurological exam / focal deficit

Subjective memory complaint

Cognitive symptoms

Behavior symptoms

Motor symptoms

expand symbol Neuropsychological testing

Neuropsychological tests

MMSE

Test norms

Domains

Composite scores

Test language

Dysexecutive function

expand symbol Demographics and characteristics

Education

Sex

Race

Ethnicity

Primary language

Age

Oldest old

Living situation / residence type

Family history of dementia

Informant demographics / characteristics

Differences by Center / region

expand symbol Subject health history

Vascular risk factors

Cardiovascular disease

Cerebrovascular disease / stroke / TIA

Parkinsonism

Seizures / epilepsy

Traumatic brain injury (TBI)

Hypertension

Hypercholesterolemia

Diabetes

Depression

Alcohol

Smoking

Sleep apnea

Psychiatric disorders

Medications

Age at onset of cognitive decline

expand symbol Neuropathology / death

Death

Neuropathology

Autopsy

Vascular pathology

Braak stage

Neuritic plaques

Lewy bodies

Tauopathies

Frontotemporal lobar degeneration (FTLD)

Corticobasal degeneration (CBD)

Progressive supranuclear palsy (PSP)

Pick's disease

Hippocampal sclerosis

expand symbol Genetics and biomarkers

GWAS

APOE

Biomarkers

APP / PS1 / PS2 mutations

Other genetic mutations / chromosomal abnormalities

MRIs

expand symbol Study design

Cross-sectional

Longitudinal

Cognitive decline / transition

Statistical methods

ROC analysis

Missing data methods

Latent class modeling/factor analysis

Epidemiology

Descriptive / exploratory

Clinicopathological/diagnostic accuracy

Risk factors

Survival analysis / prognosis

Clinical trial eligibility

Criteria/guidelines

Eligibility criteria:

Please specify the criteria used to define the population under study. For example, specify age limits or minimum neuropsychological scores. For UDS data, please indicate relevant time points (e.g., initial visit only, all visits etc.)

Data elements requested:

Please provide a list of the specific variables needed to address the stated aims, research questions or hypotheses. Electronic copies of data collection forms and data element dictionaries are available for the major NACC databases (see https://www.alz.washington.edu/WEB/dataforms_main.html), and they should be examined carefully in compiling this list. Researchers are advised to be parsimonious in requesting data, limiting the list of variables requested to those clearly necessary to address the project's aims. For UDS data, please indicate relevant time points (e.g., initial visit only, >n visits, all visits, etc.).

Would you prefer a SAS or CSV file format?

Would you like to request magnetic resonance imaging files (MRIs) for analysis as part of this data request?  If Yes, NACC staff will contact you for specifications.

No   Yes

Would you like to talk to a NACC staff member about the data or your analysis plan?

How did you learn about NACC data? (Select all that apply)

  • Researcher or clinician affiliated with an ADC
  • Web search (If you linked from another site, please specify that site:)  
  • Conference
  • Friend or colleague
  • Other (specify):  

 

 

 

 

Please contact NACC at 206-543-8637 or naccmail@uw.edu with any questions or concerns.