Information about NACC data

• Description of the data
• Data forms
  and documentation
• Study population and
  data collection
• Neuropsych test means
  and norms
• Processing your request
• Researcher responsibilities
• Ongoing and completed projects using NACC data
• NACC publications list
• Frequently asked questions

 

 

SUBMIT your abstract or manuscript to NACC for the required review

FTLD forms and documentation

(All available in PDF only.)

Initial Visit (IVP) Documents

FORMS

• Individual forms

• Full packet

 

DOCUMENTATION

• Coding Guidebook for Initial Visit Packet

Detailed, annotated explanations of each form on an item-level basis, with instructions,
operational definitions, and references

Last modified May 13, 2013

 

• Data Element Dictionary for Initial Visit Packet

• Data Template for Initial Visit Packet

 

Follow-up Visit (FVP) Documents

FORMS

• Individual forms

• Full packet

 

DOCUMENTATION

• Coding Guidebook for Follow-up Visit Packet

Detailed, annotated explanations of each form on an item-level basis, with instructions,
operational definitions, and references

Last modified April 11, 2013

 

• Data Element Dictionary for Follow-up Visit Packet

• Data Template for Follow-up Visit Packet

 

Neuropsychological Battery

TESTS

• Neuropsychological Battery Worksheets

• Neuropsychological Battery Worksheets with stimuli

 

DOCUMENTATION

• Instructions for Neuropsychological Battery

Detailed instructions for administration and scoring of the neuropsychological tests

Last modified July 26, 2012