NOTE: A new version of the FTLD Module forms was implemented March 15, 2015, and we have begun to collect data submitted using the new forms. What researchers need to know during this transition:

  • Data from Version 3 will not be available to researchers until late 2015, when enough data have accumulated for research utility.
  • In the meantime, data from Version 2 will be provided to researchers.
  • The Version 2 forms and documentation are listed below. (Note: ADC researchers who need to administer the v3 FTLD Module forms can find them here.)

About Version 3 of the FTLD Module: Most of the Version 3 updates were aimed at ensuring that the module is compatible with Version 3 of the UDS and that its data do not overlap those collected by the UDS. In addition, some of the questions related to PPA and bvFTD were improved.

FTLD Module v2 forms and documentation

All available in PDF only

Initial Visit (IVP)

Follow-up Visit (FVP)

DATA-COLLECTION FORMS

Individual forms

Individual forms

Full forms packet

Full forms packet

CODING GUIDEBOOKS

IVP Coding Guidebook

Detailed, annotated explanations of each form on an item-level basis, with instructions, operational definitions, and references

FVP Coding Guidebook

Detailed, annotated explanations of each form on an item-level basis, with instructions, operational definitions, and references

MORE DOCUMENTATION

Data Element Dictionary for IVP

Data Element Dictionary for FVP

FTLD Module training materials

Frequently Asked Questions on administering the FTLD Module

FTLD Neuropsychological Battery