NOTE: A new version of the Uniform Data Set (UDS) forms was implemented March 15, 2015, and we have begun to collect data submitted using the new forms. What researchers need to know during this transition:

  • Data from Version 3 will not be available to researchers until late 2015, when enough data have accumulated for research utility.
  • In the meantime, data from Version 2 will be provided to researchers.
  • Links to the Version 2 forms and documentation are listed below. (NOTE: ADC researchers needing to administer UDS3 can find forms here.)

About Version 3 vs. Version 2: UDS3 incorporates the most recent diagnostic criteria; features additional questions on CSF and imaging biomarker test findings; collects more detailed neurological exam findings; and incorporates a number of changes in the neuropsychological battery.

UDS forms and documentation

All available in PDF only

Initial Visit (IVP)

Follow-up Visit (FVP)

Telephone Follow-up (TFP)

FORMS

Individual forms

Individual forms

Individual forms

Full forms packet

Full forms packet

Full forms packet

Individual forms, Spanish module

Individual forms, Spanish module

Individual forms, Spanish module

Full packet, Spanish module

Full packet, Spanish module

Full packet, Spanish module

CODING GUIDEBOOKS

IVP Coding Guidebook

Detailed, annotated explanations of each form on an item-level basis, with instructions, operational definitions, and references

FVP Coding Guidebook

Detailed, annotated explanations of each form on an item-level basis, with instructions, operational definitions, and references

TFP Coding Guidebook

Detailed, annotated explanations of each form on an item-level basis, with instructions, operational definitions, and

DATA ELEMENT DICTIONARIES

DED for IVP

DED for FVP

DED for TFP

DED, Spanish module

DED, Spanish module

DED, Spanish module

CLICK HERE for previous version: UDS v1.2 documents (discontinued for data collection)

UDS Neuropsychological Battery

Please note that because of our licensing agreements with test publishers, we must restrict access to the neuropsychological battery to those with ADC affiliation and an account on the NACC website. Copies of unmodified versions of these forms may be obtained directly from the appropriate publisher, as referenced in the relevant UDS Coding Guidebook (see table above). If you have any questions, please email us at naccmail@uw.edu.

Milestone Form and documentation