NOTE: Version 3 of the Uniform Data Set (UDS) was implemented March 15, 2015. Compared to Version 2 of the UDS, Version 3 has incorporated the most recent diagnostic criteria, added questions on CSF and imaging biomarker test findings, added more detailed neurological exam findings, and included a number of neuropsychological battery changes.

Data from Version 3 will not be available to researchers until late 2015, when enough data have accumulated for research utility. In the meantime, data from Version 2 will be provided to researchers. The Version 2 forms and documentation for the Version 2 data are listed below.

UDS forms and documentation

All available in PDF only

Initial Visit (IVP)

Follow-up Visit (FVP)

Telephone Follow-up (TFP)

FORMS

Individual forms

Individual forms

Individual forms

Full forms packet

Full forms packet

Full forms packet

Individual forms, Spanish module

Individual forms, Spanish module

Individual forms, Spanish module

Full packet, Spanish module

Full packet, Spanish module

Full packet, Spanish module

CODING GUIDEBOOKS

IVP Coding Guidebook

Detailed, annotated explanations of each form on an item-level basis, with instructions, operational definitions, and references

FVP Coding Guidebook

Detailed, annotated explanations of each form on an item-level basis, with instructions, operational definitions, and references

TFP Coding Guidebook

Detailed, annotated explanations of each form on an item-level basis, with instructions, operational definitions, and

DATA ELEMENT DICTIONARIES

DED for IVP

DED for FVP

DED for TFP

DED, Spanish module

DED, Spanish module

DED, Spanish module

CLICK HERE for previous version: UDS v1.2 documents (discontinued for data collection)

UDS Neuropsychological Battery

Please note that because of our licensing agreements with test publishers, we must restrict access to the neuropsychological battery to those with ADC affiliation and an account on the NACC website. Copies of unmodified versions of these forms may be obtained directly from the appropriate publisher, as referenced in the relevant UDS Coding Guidebook (see table above). If you have any questions, please email us at naccmail@uw.edu.

Milestone Form and documentation