Venn diagram

Web-based
query system

With NACC’s direct query system, you can create frequency tables of data from the Uniform Data Set, the Neuropathology Data Set, and the FTLD Module. These tables can help you determine quickly whether NACC is likely to have the subjects you’re looking for in numbers sufficient to address your research question. Please note that these should be used as rough, preliminary numbers; for publication purposes, a more detailed data request is required.

Many data elements used in NACC’s direct query system are derived or calculated variables that describe a combination of data elements taken directly from the UDS forms (e.g., “Age at initial visit” is derived from the subject’s birth year and month and the date of the initial UDS visit).

NOTE: Data collected using version 10 of the Neuropathology Form will be available soon. NP data sample size may be underestimated.

There are three steps to creating a frequency table: first, choose the subjects you want to include; next, select the variable(s) you want to see for those subjects; finally, choose the type of output you want (web or PDF).

Step 1: Select the subject inclusion criteria:

OPTION A — Use a subset of the UDS: In the columns below, choose one to three criteria, specifying the relationship between them as “AND” or “OR” (choose “N/A” if you don’t want to apply any criterion for a particular column).

Please note that when three criteria are selected using a combination of AND and OR, the criteria are applied to the data in the following order:

  • Scenario 1: [Criterion 1 OR (Criterion 2 AND Criterion 3)]
  • Scenario 2: [(Criterion 1 AND Criterion 2) OR Criterion 3]

OPTION B — Use all of the UDS: If you don’t want to focus on a specific sub-population (e.g., <65-year-olds), click "Next" to go directly to Step 2; in this case, your table will include all UDS subjects.

CRITERION #1

INCLUDE ALL UDS SUBJECTS
  (no criteria)

– OR – choose from options below:

AGE OF PARTICIPANT

At initial UDS visit

 < 65 years

 65 – 89 years

 ≥ 90 years

At most recent UDS visit

 < 65 years

 65 – 89 years

 ≥ 90 years

At most recent UDS+FTLD visit

 < 65 years

 65 – 89 years

 ≥ 90 years

COGNITIVE STATUS

At initial UDS visit

 Normal cognition

 Impaired, not MCI

 MCI

 Dementia

At most recent UDS visit

 Normal cognition

 Impaired, not MCI

 MCI

 Dementia

At most recent UDS+FTLD visit

 Normal cognition

 Impaired, not MCI

 MCI

 Dementia

AGE OF ONSET of cognitive decline

 < 65 years

 65 – 89 years

 ≥ 90 years

SEX

 Male

 Female

RACE

 White

 Black or African American

 American Indian or Alaska Native

 Native Hawaiian or other Pacific
  Islander

 Asian

 Multiracial

 Unknown or ambiguous

HISPANIC ETHNICITY

 No

 Yes

NUMBER OF VISITS

 1

 ≥ 2

 ≥ 3

APOE (number of E4 alleles)

 0

 1

 2

GENOTYPE AVAILABLE AT ADGC

 Yes

FTLD MODULE DATA AVAILABLE

 Yes

NP DATA AVAILABLE

 Yes

 and

 or

 n/a

CRITERION #2

INCLUDE ALL UDS SUBJECTS
  (no criteria)

– OR – choose from options below:

AGE OF PARTICIPANT

At initial UDS visit

 < 65 years

 65 – 89 years

 ≥ 90 years

At most recent UDS visit

 < 65 years

 65 – 89 years

 ≥ 90 years

At most recent UDS+FTLD visit

 < 65 years

 65 – 89 years

 ≥ 90 years

COGNITIVE STATUS

At initial UDS visit

 Normal cognition

 Impaired, not MCI

 MCI

 Dementia

At most recent UDS visit

 Normal cognition

 Impaired, not MCI

 MCI

 Dementia

At most recent UDS+FTLD visit

 Normal cognition

 Impaired, not MCI

 MCI

 Dementia

AGE OF ONSET of cognitive decline

 < 65 years

 65 – 89 years

 ≥ 90 years

SEX

 Male

 Female

RACE

 White

 Black or African American

 American Indian or Alaska Native

 Native Hawaiian or other Pacific
  Islander

 Asian

 Multiracial

 Unknown or ambiguous

HISPANIC ETHNICITY

 No

 Yes

NUMBER OF VISITS

 1

 ≥ 2

 ≥ 3

APOE (number of E4 alleles)

 0

 1

 2

GENOTYPE AVAILABLE AT ADGC

 Yes

FTLD MODULE DATA AVAILABLE

 Yes

NP DATA AVAILABLE

 Yes

 and

 or

 n/a

CRITERION #3

INCLUDE ALL UDS SUBJECTS
  (no criteria)

– OR – choose from options below:

AGE OF PARTICIPANT

At initial UDS visit

 < 65 years

 65 – 89 years

 ≥ 90 years

At most recent UDS visit

 < 65 years

 65 – 89 years

 ≥ 90 years

At most recent UDS+FTLD visit

 < 65 years

 65 – 89 years

 ≥ 90 years

COGNITIVE STATUS

At initial UDS visit

 Normal cognition

 Impaired, not MCI

 MCI

 Dementia

At most recent UDS visit

 Normal cognition

 Impaired, not MCI

 MCI

 Dementia

At most recent UDS+FTLD visit

 Normal cognition

 Impaired, not MCI

 MCI

 Dementia

AGE OF ONSET of cognitive decline

 < 65 years

 65 – 89 years

 ≥ 90 years

SEX

 Male

 Female

RACE

 White

 Black or African American

 American Indian or Alaska Native

 Native Hawaiian or other Pacific
  Islander

 Asian

 Multiracial

 Unknown or ambiguous

HISPANIC ETHNICITY

 No

 Yes

NUMBER OF VISITS

 1

 ≥ 2

 ≥ 3

APOE (number of E4 alleles)

 0

 1

 2

GENOTYPE AVAILABLE AT ADGC

 Yes

FTLD MODULE DATA AVAILABLE

 Yes

NP DATA AVAILABLE

 Yes