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WEB-BASED

Query system

With NACC’s query system, you can determine quickly whether NACC is likely to have subjects you're looking for in numbers sufficient to address your research question. Please note that these should be used only as rough, preliminary numbers. For publication purposes, please make a custom data request.

Many data elements used in NACC’s direct query system are derived or calculated variables that describe a combination of data elements taken directly from the UDS forms (e.g., “Age at initial visit” is derived from the subject’s birth year and month and the date of the initial UDS visit). The guide to the query system describes the sources for these data elements.

PLEASE MAKE YOUR SELECTIONS from the table below. Note that some variables are available only as a row option or only as row and column. After making your selections, click "SUBMIT" to continue.

 Available as:

ROW

COLUMN

PAGE

UDS visits completed

Available as:

ROW

COLUMN

PAGE

Age, initial visit

 

Age, most recent visit

 

Sex

Race

 

Hispanic ethnicity

Primary language

 

Years of Education

Available as:

ROW

COLUMN

PAGE

Global CDR, initial visit

 

Global CDR, most recent visit

 

CDR – Behavior, comportment, and personality, initial visit

 

CDR – Behavior, comportment, and personality, most recent visit

 

CDR – Language, initial visit

 

CDR – Language, most recent visit

 

Available as:

ROW

COLUMN

PAGE

Cognitive status, initial visit

Cognitive status, most recent visit

Available as:

ROW

COLUMN

PAGE

Primary clinical diagnosis, initial visit

Primary clinical diagnosis, most recent visit

Available as:

ROW

COLUMN

PAGE

FTLD module visits completed

Subject/family has known FTLD mutation (MAPT, PGRN, C9ORF72, FUS)

FTLD type, most recent FTLD module visit

Available as:

ROW

COLUMN

PAGE

APOE genotype available at NACC

APOE genotype

Number of APOE e4 alleles

Subject/family has known AD Mutation (APP, PS1, PS2)

Subject/family has known FTLD mutation (MAPT, PGRN, C9ORF72, FUS)

Genomic data/DNA samples available outside of NACC (ADGC, NIAGADS, NCRAD)

Available as:

ROW

COLUMN

PAGE

CSF biomarker data available at NACC (A-beta, p-tau, t-tau)

Available as:

ROW

COLUMN

PAGE

At least one MRI available for download - by scan type

Longitudinal MRIs available for download - by scan type

Calculated summary MRI volume data available - at least one visit, longitudinal

Calculated summary MRI volume data avail – by brain region

Age at first MRI available for download

At least one amyloid PET available for download

Available as:

ROW

COLUMN

PAGE

Neuropathology data available

Thal phase (A score)

Braak neurofibrillary stage (B score)

Neuritic plaque score (C score)

Alzheimer's disease neuropathology present (B+C score)

Alzheimer's disease neuropathology change (ADNC score)

Cerebrovascular pathology - by type

Hippocampal sclerosis

Lewy body disease pathology - by region

FTLD neuropathology - by type

No major neuropathologic change present