Is this an update or addendum to a previous NACC data request? No
If yes, please provide the name of the most recent file for which you are requesting an update.
This abstract will be posted for public access in the "Research in Progress" Brief project description including specific aims: or "Completed Using NACC Data" section of this website to describe your ongoing and completed work with NACC data.
From the options below, please select 3 to 5 key words that describe your proposed Key Word Selection: research using NACC data. For a printable pdf of the key word options, click here.
+Clinical Diagnosis / Suspected Etiology / Syndrome
Alzheimer's disease / LOAD
Early Onset AD
Pre-clinical / pre-symptomatic Alzheimer's disease
Mild cognitive impairment
Impaired, not mild cognitive impairment
Lewy body dementia
Frontotemporal dementia (FTD)
Primary progressive aphasia (PPA)
Down's syndrome +Clinical Measures and Symptoms
Height / weight
HIS and CVD / Hachinski ischemic score
Gait disturbance / tremor / other movement disorders
CDR / CDR global score / CDR sum of boxes
NPI-Q / neuropsychiatric symptoms
GDS / Geriatric Depression Scale / behavioral assessment
FAQ / functional impairment/functional decline
Neurological exam / focal deficit
Subjective memory complaint
Motor symptoms +Neuropsychological Testing
Dysexecutive function +Demographics and Characteristics
Living situation / residence type
Family history of dementia
Informant demographics / characteristics
Differences by center / region +Subject Health History
Vascular risk factors
Cerebrovascular disease / stroke / TIA
Seizures / epilepsy
Traumatic brain injury / TBI
Age at onset of cognitive decline +Neuropathology / Death
Frontotemporal lobar degeneration (FTLD)
Corticobasal degeneration (CBD)
Progressive supranuclear palsy (PSP)
Hippocampal sclerosis +Genetics and Biomarkers
APP / PS1 / PS2 mutations
Other genetic mutations / chromosomal abnormalities +Study Design
Cognitive decline / transition
Missing data methods
Latent class modeling/factor analysis
Descriptive / exploratory
Survival analysis / prognosis
Clinical trial eligibility
Please specify the criteria used to define the population under study.
For example, specify age limits or minimum neuropsychological scores.
Eligibility Criteria: For UDS data, please indicate relevant time points (e.g., initial visit only,
all visits etc.)
Please provide a list of the specific variables needed to address the stated
aims, research questions or hypotheses. Data Elements Requested: Electronic copies of data collection
forms and data element dictionaries are available for the major NACC databases
and they should be examined carefully in compiling this list. https://www.alz.washington.edu/WEB/dataforms-main.html
Researchers are advised to be parsimonious in requesting data, limiting the list of variables requested to those clearly necessary to address the projects aims.
For UDS data, please indicate relevant time points (e.g., initial visit only,
all visits etc.)
Would you prefer a SAS or CSV file format?
Would you like to request magnetic resonance imaging files (MRIs) for analysis as part of this data request? If Yes, NACC staff will contact you for specifications. No
Would you like to talk to a NACC staff member about the data or your analysis plan?
How did you learn about NACC data? (Select all that apply)
a) Researcher/clinician affiliated with an ADC
b) Web search (specify web page found from)
d) Friend or colleague
e) Other (specify)