Please fill in the requested information, then click on the "Continue" button to electronically submit the form. You will be contacted by a NACC staff member within two business days. Note that investigator name, institution, email address, title, abstract, and key words will be displayed on the researcher's page on the NACC website.

NACC cannot ensure that each data request and resulting data set is novel to the NACC database. It is the responsibility of the researcher, not NACC, to identify a unique research hypothesis and ensure there is no significant overlap with other ongoing or published NACC data analyses.

NACC confidentiality agreement

These data are to be used for informational purposes only. Any effort to determine the personal identity associated with any reported data is prohibited. Distribution or release of data or image files obtained from the National Alzheimer's Coordinating Center to third parties is prohibited. Data requests, analyses, and potential publications using the information contained in this database are subject to review by NACC and/or the NACC Steering Committee.

Downloading these data indicates that you accept the terms of this agreement:

1.) that you maintain data confidentiality;
2.) that you will not distribute the data or image file to a third party; and
3.) that you will follow NACC publication guidelines (listed below) before seeking to publish results.

NACC publication guidelines

• All publications, posters and presentations using NACC data must reference the NACC grant number, U01 AG016976.
• All manuscripts and abstracts using NACC data must be submitted to NACC's Manuscript and Abstract Submission System for a brief administrative review prior to journal or conference submission.

Contact Information:


First Name:               

Last Name:                

Address:                  

Home Institution:         

City:                     

State:                    

Zip:                      

Email Address:            

Phone Number:             

Is this an update or addendum to a previous NACC data request?

No
Yes

If yes, please provide the name of the most recent file for which
you are requesting an update.



Project Title:



Brief project description including specific aims:
This abstract will be posted for public access in the "Research in Progress"
or "Completed Using NACC Data" section of this website to describe your
ongoing and completed work with NACC data. 



Key Word Selection:
From the options below, please select 3 to 5 key words that describe your proposed
research using NACC data. For a printable pdf of the key word options, click here. 

+Clinical Diagnosis / Suspected Etiology / Syndrome

    Clinial Diagnosis
    Normal cognition
    Dementia
    Alzheimer's disease / LOAD
    Early Onset AD
    Pre-clinical / pre-symptomatic Alzheimer's disease
    Mild cognitive impairment
    Impaired, not mild cognitive impairment
    Lewy body dementia
    Frontotemporal dementia (FTD)
    Vascular dementia
    Primary progressive aphasia (PPA)
    Huntington's disease
    Prion disease
    Parkinson's disease
    Down's syndrome

+Clinical Measures and Symptoms

    Blood pressure
    Height / weight
    HIS and CVD / Hachinski ischemic score
    UPDRS/parkinsonism
    Gait disturbance  / tremor / other movement disorders
    CDR / CDR global score / CDR sum of boxes
    NPI-Q / neuropsychiatric symptoms
    GDS / Geriatric Depression Scale / behavioral assessment
    FAQ / functional impairment/functional decline
    Neurological exam / focal deficit
    Subjective memory complaint
    Cognitive symptoms
    Behavior symptoms
    Motor symptoms


+Neuropsychological Testing

    Neuropsychological tests
    MMSE
    Test norms
    Domains
    Composite scores
    Test language
    Dysexecutive function


+Demographics and Characteristics

    Education
    Sex
    Race
    Ethnicity
    Primary language
    Age
    Oldest old
    Living situation / residence type
    Family history of dementia
    Informant demographics / characteristics
    Differences by center / region


+Subject Health History

    Vascular risk factors
    Cardiovascular disease
    Cerebrovascular disease / stroke / TIA
    Parkinsonism
    Seizures / epilepsy
    Traumatic brain injury / TBI
    Hypertension
    Hypercholesterolemia
    Diabetes
    Depression
    Alcohol
    Smoking
    Sleep apnea
    Psychiatric disorders
    Medications
    Age at onset of cognitive decline


+Neuropathology / Death

    Death
    Neuropathology
    Autopsy
    Vascular pathology
    Braak stage
    Neuritic plaques
    Lewy bodies
    Tauopathies
    Frontotemporal lobar degeneration (FTLD)
    Corticobasal degeneration (CBD)
    Progressive supranuclear palsy (PSP)
    Pick's disease
    Hippocampal sclerosis


+Genetics and Biomarkers

    GWAS
    APOE
    Biomarkers
    APP / PS1 / PS2 mutations
    Other genetic mutations / chromosomal abnormalities


+Study Design

    Cross-sectional
    Longitudinal
    Cognitive decline / transition
    Statistical methods
    ROC analysis
    Missing data methods
    Latent class modeling/factor analysis
    Epidemiology
    Descriptive / exploratory
    Clinicopathological/diagnostic accuracy
    Risk factors
    Survival analysis / prognosis
    Clinical trial eligibility
    Criteria/guidelines


Eligibility Criteria:
Please specify the criteria used to define the population under study.
For example, specify age limits or minimum neuropsychological scores.

For UDS data, please indicate relevant time points (e.g., initial visit only,
all visits etc.)



Data Elements Requested:
Please provide a list of the specific variables needed to address the stated
aims, research questions or hypotheses. Electronic copies of data collection
forms and data element dictionaries are available for the major NACC databases
and they should be examined carefully in compiling this list. 

 https://www.alz.washington.edu/WEB/dataforms-main.html  

Researchers are advised to be parsimonious in requesting data, limiting the list of
variables requested to those clearly necessary to address the projects aims. 

For UDS data, please indicate relevant time points (e.g., initial visit only,
all visits etc.)




Would you prefer a SAS or CSV file format?




Would you like to request magnetic resonance imaging files (MRIs)
for analysis as part of this data request?
If Yes, NACC staff will contact you for specifications.


No
Yes


Would you like to talk to a NACC staff member about the data or your
analysis plan?




How did you learn about NACC data? (Select all that apply)


 a) Researcher/clinician affiliated with an ADC
 b) Web search (specify web page found from) 
 c) Conference
 d) Friend or colleague
 e) Other (specify) 








Please contact NACC at 206-543-8637 or naccmail@u.washington.edu with any questions or concerns.