Please provide the information requested below, and then click Continue to submit the form. You will be contacted by a NACC staff member within two business days. Note that investigator name, institution, email address, title, abstract, and key words will be displayed on the Researchers page on the NACC website.
NACC cannot ensure that each data request and resulting data set are novel to the NACC database. It is the responsibility of the researcher, not NACC, to identify a unique research hypothesis and ensure that there is no significant overlap with other ongoing or published NACC data analyses.
These data are to be used for informational purposes only. Any effort to determine the personal identity associated with any reported data is prohibited. Distribution or release of data or image files obtained from the National Alzheimer's Coordinating Center to third parties is prohibited. Data requests, analyses, and potential publications using the information contained in this database are subject to review by NACC and/or the NACC Steering Committee.
Before submitting your abstract or manuscript for publication, please review NACC's Checklist for Authors (PDF). The Checklist contains a new acknowledgment statement that must be included in all manuscripts and abstracts using NACC data.
In addition, all abstracts and manuscripts using NACC data must be submitted to NACC for an administrative check for grant number and data definition consistency before being submitted for publication (e.g., to a journal or conference).
Is this an update of or addendum to a previous NACC data request?
If yes, please provide the name of the most recent file for which you are requesting an update:
Brief project description: Specific aims
1) State concisely the goals of the proposed research
and summarize the expected outcome(s), including the impact that the results of the proposed research will exert on the research field(s) involved.
2) List succinctly the specific objectives of the research proposed, e.g., to test a stated hypothesis, create a novel design, solve a specific problem, challenge an existing paradigm or clinical practice, address a critical barrier to progress in the field, or develop new technology. (Be specific regarding this particular request)
These aims will be posted for public access in the section of this website titled "Ongoing and Completed Research Using NACC Data."
From the options below, please select 3 to 5 keywords that describe your proposed research using NACC data. For a printable PDF of the keyword options, click here.
Please specify the criteria used to define the population under study. For example, specify age limits or minimum neuropsychological scores.
For UDS data, please indicate relevant time points (e.g., initial visit only, all visits etc.)
Data elements requested:
Please provide a list of the specific variables needed to address the stated aims, research questions or hypotheses. Electronic copies of data collection
forms and data element dictionaries are available for the major NACC databases (see https://www.alz.washington.edu/WEB/dataforms_main.html), and they should be examined carefully in compiling this list. Researchers are advised to be parsimonious in requesting data, limiting the list of variables requested to those clearly necessary to address the project's aims. For UDS data, please indicate relevant time points (e.g., initial visit only, >n visits, all visits, etc.).
Would you prefer a SAS or CSV file format?
Would you like to request magnetic resonance imaging files (MRIs) for analysis as part of this data request?
If Yes, NACC staff will contact you for specifications.
Would you like to talk to a NACC staff member about the data or your analysis plan?
How did you learn about NACC data? (Select all that apply)
Please contact NACC at 206-543-8637 or firstname.lastname@example.org with any questions or concerns.