Data-collection forms and documentation

The table below provides brief descriptions of the NACC data sets, along with links to forms, coding guidebooks, data element dictionaries, and other documentation:

Data set

Description

Uniform Data Set (UDS)

Standardized longitudinal clinical data on Alzheimer's Disease Center subjects (2005 – present)

FTLD Module

Supplemental clinical evaluation focused on frontotemporal lobar degeneration (UDS subjects)

Neuropathology Data Set (NP)

Standardized neuropathology data on autopsied UDS and MDS subjects

Biomarker and Imaging Data Sets

Supplemental data available for a subset of UDS subjects

Minimum Data Set (MDS)

Abstracted data on Alzheimer's Disease Center subjects (1984 – 2005)

Researchers Data Dictionary for UDS3 (RDD-UDS)

First and primary resource for researchers analyzing NACC clinical and demographic data

NACC References

Articles cited in the documentation for the UDS, FTLD, and NP data sets

Historical documentation

Access to the NACC Derived Variables Guide

Permission Request Form

Complete and submit this form for permission to reproduce NACC documents