Direct query system

With NACC’s direct query system, you can create frequency tables of data from the Uniform Data Set, the Neuropathology Data Set, and the FTLD Module. These tables can help you determine quickly whether NACC is likely to have the subjects you’re looking for in numbers sufficient to address your research question. Please note that these should be used as rough, preliminary numbers; for publication purposes, a more detailed data request is required.

Many data elements used in NACC’s direct query system are derived or calculated variables that describe a combination of data elements taken directly from the UDS forms (e.g., “Age at initial visit” is derived from the subject’s birth year and month and the date of the initial UDS visit).

There are three steps to creating a frequency table: first, choose the subjects you want to include; next, select the
variable(s) you want to see for those subjects; finally, choose the type of output you want (web or PDF).

Follow the menus below:

Step 1: Select the subject inclusion criteria
Option a — Use a subset of the UDS: In the columns below, choose one to three criteria, specifying the
relationship between them as “AND” or “OR” (choose “N/A” if you don’t want to apply any criterion for a particular column).
 
Option b — Use all of the UDS: If you don’t want to focus on a specific sub-population (e.g., <65-year-olds), click
“Next” to go directly to Step 2; in this case, your table will include all UDS subjects.

   CRITERION 1

No criteria/All UDS subjects
Age
 

   Most recent UDS visit (yrs)

 
    < 65
    65-89
    ≥ 90

   Most recent UDS visit (yrs)

 
    < 65
    65-89
    ≥ 90

   Most recent UDS + FTLD visit (yrs)

 
    < 65
    65-89
    ≥ 90

Cognitive status
 

   Initial UDS visit

 
    Normal cognition
    Impaired, not MCI
    MCI
    Dementia

   Most recent UDS visit

 
    Normal cognition
    Impaired, not MCI
    MCI
    Dementia

   Most recent UDS + FTLD visits

 
    Normal cognition
    Impaired, not MCI
    MCI
    Dementia

Cognitive decline onset age (yrs)
 
< 65
65-89
≥ 90

Sex
 
Male
Female

Race
 
White
Black or African American
American Indian or Alaska Native
Native Hawaiian or Other Pacific Islander
Asian
Multiracial
Unknown of Ambiguous

Hispanic ethnicity
 
No
Yes

Number of visits
 
1
≥ 2
≥ 3

APOE (number of E4 alleles)
 
0
1
2

Genotype are available at ADGC
 
Yes

FTLD Module data available
 
Yes

NP data available
 
Yes


N/A
And
Or

   CRITERION 2

No criteria/All UDS subjects
Age
 

   Initial UDS visit (yrs)

 
    < 65
    65-89
    ≥ 90

   Most recent UDS visit (yrs)

 
    < 65
    65-89
    ≥ 90

   Most recent UDS + FTLD visit (yrs)

 
    < 65
    65-89
    ≥ 90

Cognitive status
 

   Initial UDS visit

 
    Normal cognition
    Impaired, not MCI
    MCI
    Dementia

   Most recent UDS visit

 
    Normal cognition
    Impaired, not MCI
    MCI
    Dementia

   Most recent UDS + FTLD visit

 
    Normal cognition
    Impaired, not MCI
    MCI
    Dementia

Cognitive decline onset age (yrs)
 
< 65
65-89
≥ 90

Sex
 
Male
Female

Race
 
White
Black or African American
American Indian or Alaska Native
Native Hawaiian or Other Pacific Islander
Asian
Multiracial
Unknown of Ambiguous

Hispanic ethnicity
 
No
Yes

Number of visits
 
1
≥ 2
≥ 3

APOE (Number of E4 alleles)
 
0
1
2

Genotype are available at ADGC
 
Yes

FTLD Module data available
 
Yes

NP data available
 
Yes


N/A
And
Or

   CRITERION 3

No criteria/All UDS subjects
Age
 

   Initial UDS visit (yrs)

 
    < 65
    65-89
    > 90

   Most recent UDS visit (yrs)

 
    < 65
    65-89
    > 90

   Most recent UDS + FTLD visit (yrs)

 
    < 65
    65-89
    > 90

Cognitive status
 

   Initial UDS visit

 
    Normal cognition
    Impaired, not MCI
    MCI
    Dementia

   Most recent UDS visit

 
    Normal cognition
    Impaired, not MCI
    MCI
    Dementia

   Most recent UDS + FTLD visit

 
    Normal cognition
    Impaired, not MCI
    MCI
    Dementia

Cognitive decline onset age (yrs)
 
< 65
65-89
> 90

Sex
 
Male
Female

Race
 
White
Black or African American
American Indian or Alaska Native
Native Hawaiian or Other Pacific Islander
Asian
Multiracial
Unknown of Ambiguous

Hispanic ethnicity
 
No
Yes

Number of visits
 
1
≥ 2
≥ 3

APOE (number of E4 alleles)
 
0
1
2

Genotype are available at ADGC
 
Yes

FTLD Module data available
 
Yes

NP data available
 
Yes