https://www.alz.washington.edu National Alzheimer's Corrdinating Center (NACC) Welcome to our newest committee members... *Liang Yap PhD (ADC Administrators Steering Comm) *Brad Glazier (ADC Administrators Steering Comm) Thank you to members rotating off the committees after the Fall 2016 meetings, 14 Sep 16 11:50:11 PST 17 Aug 16 09:40:41 PST Welcome to our newest committee members... *Brad Hyman, MD, PhD (ADC Executive Comm) *Victor Henderson, MD and Andy Saykin, PsyD (NACC Steering Comm) 16 Aug 16 09:06:46 PST A sentence has been added to the instructions for Form B5 (NPI-Q) to make it clear that the form should be administered for all UDS subjects, just as had been the case in UDS2. Updated versions of the forms, form packets, and guidebooks (initial, follow-up, and telephone versions) are now available on the NACC website. 15 Aug 16 11:10:52 PST Will you be at AAIC 2016? This year's conference features 26 posters and talks that make use of NACC data. We invite you to stop by our exhibit booth (Booth #219) to see what?s new at NACC. 19 Jul 16 10:18:19 PST The NACC FY2017 funding announcements for Collaborative and Junior Investigator projects have been released. ADC Personnel are encouraged to apply. The deadline for application submissions is Jan 18, 2017. https://www.alz.washington.edu/NONMEMBER/INVEST/newopps.html 19 Jul 16 10:13:04 PST Abstracts are now being solicited and registration will open soon for the Oct 13, 2016 Statistical Methods Conference on Aging Dementia in Baltimore MD.Please visit the conference website for details. http://www.alz.washington.edu/WEB/smcHome.html 13 Jun 16 08:46:50 PST Welcome to Richard Chappell, the newest member of the ADC Data Core Steering Committee, and thanks to Johnathan Mahnken who will be rotating off. 07 Jun 16 11:37:02 PST Massachusetts General Hospital and Harvard Medical School are seeking a Postdoctoral Research Fellow to support the Laboratory for Computational Neuroimaging at the Athinoula A. Martinos Center for Biomedical Imaging. 02 Jun 16 09:00:03 PST ADCs, the UDS and NP current databases have been frozen as of June 1. Please review and return the certification reports before June 8 to confirm that the data held at NACC are an accurate representation of the data at your center. 02 Jun 16 08:34:26 PST Attending AAIC in Toronto July 24-28? Check out some of the preconferences that are being offered this year. https://www.alz.org/?/preconfer?/overview-pre-conference.asp 12 May 16 08:37:17 PST Duke's Department of Pathology is seeking a neuropathologist to provide diagnostic services and to support a new research center for neurodegenerative diseases. http://pathology.duke.edu/job-announcement-neuropathology 21 Apr 16 15:45:29 PST Register now for Clinical Updates in Dementia Webinar Series sponsored by the Univ of Pittsburgh ADRC and the Alzheimer's Association. Program is approved for CE's in Pennsylvania. https://sbs.ucsur.pitt.edu/gwep/reg/?e=67851 18 Apr 16 12:20:01 PST UC Davis NIA-Funded Research Centers Discuss Diversity, Disparities and Cognitive Aging. http://ats.ucdavis.edu/ats-video/?kpid=0_uf4q5pk4 18 Apr 16 11:56:04 PST Academic Neuropsychologist position available at the Univ of California, Davis Alzheimer?s Disease Center in Walnut Creek, CA. More info at: https://recruit.ucdavis.edu/apply/JPF00772 07 Apr 16 08:41:50 PST Upcoming webinars for potential applicants of PAR-15-350 Emerging Directions for Addressing Health Disparities in Alzheimer???s Disease (R03) and PAR-15-349 Health Disparities and Alzheimer???s Disease (R01). http://grants.nih.gov/grants/guide/notice-files/NOT-AG-16-018.html 23 Mar 16 12:32:00 PST The NACC UDS and NP data freezes have now been completed. The NACC Databases are open for all centers to submit and finalize new data. 09 Mar 16 09:20:27 PST ADCs, the UDS and NP current databases have been frozen. Please review the certification reports before March 7 to confirm that the data held at NACC are an accurate representation of the data at your center. 02 Mar 16 09:48:35 PST $16 million of the recent AD appropriation is available as SBIR/STTR small business funding. Learn more at https://www.nia.nih.gov/research/blog/2016/02/where-rubber-meets-road-small-busi nesses-and-alzheimers-research 19 Feb 16 14:31:16 PST The ADC Clin Core Leaders have elected Mary Sano as the newest member of the Steering Comm. We wish to thank all nominees for their participation, and we encourage their continued interest in serving on the committee in the future. 10 Feb 16 15:08:55 PST ORE Core Leaders, help develop consistent brain donation materials that can be customized for each ADC???s media, by sending your ADC's brain donation materials Darby Morhardt at Northwestern. 09 Feb 16 11:15:23 PST For people with Down syndrome, getting older can bring new health challenges, including Alzheimer???s disease. Find a free fact sheet for Alzheimer's Disease in People with Down Syndrome at https://www.nia.nih.gov/alzheimers/publication/alzheimers-disease-people-down-sy ndrome 05 Feb 16 09:08:35 PST VA report on Veterans Health Administration (VHA) Innovative Dementia Models of Care: Patient-Centered Alternatives to Institutional Extended Care has been released. http://www.va.gov/GERIATRICS/docs/VHA_Innovative_Dementia_Models_of_Care_Sept_20 15.pdf 05 Feb 16 09:06:06 PST The Massachusetts Alzheimer's Disease Research Center (ADRC) has an opening for a two-year Clinical Fellowship in Dementia at the Massachusetts General Hospital (MGH). http://www.madrc.org/2017-massachusetts-general-hospital-clinical-fellowship-dem entia 05 Feb 16 09:04:21 PST This week???s ???Inside NIA??? blog features a discussion by NIA Director Dr. Richard Hodes of the FY2016 budget for NIH and NIA. https://www.nia.nih.gov/???/2016/01/encouraging-start-new-year 06 Jan 16 08:35:55 PST NACC is seeking applications for two types of projects: a Junior Investigator project (maximum award $50,000) and a Collaborative project ($300,000). For more information and an application, please visit the NACC website at https://www.alz.washington.edu/NONMEMBER/INVEST/newopps.html. 27 Oct 15 09:43:14 PST It has come to our attention that the instructions for the UDS3 version of Form B5 are wrong. They specify symptom changes in the last month, whereas the intention has always been to record symptoms present in the last month associated with 'changes since onset' of memory/cognitive problems. Corrected documents will be available next week. In the meantime, please SUSPEND USE OF 18 Jun 15 13:59:48 PST The NACC website and server will not be available for about 24 hours beginning at 5pm PST Thursday, June 18. In order to keep up with increasing computing demand, NACC is installing a more powerful server with more CPUs and storage. We apologize for any inconvenience. 08 Jun 15 15:39:26 PST IVP DED: The 'Blanks' text for Form A2, Questions 9a and 9b, was corrected to read 'Blank if Question 9 INLIVWTH=1 (Yes)'. The allowable codes for Form A2, Question 9b, was corrected so that the numeral 4 corresponds to 'At least 3 times per month.' FVP and TFP DED: The 'Blanks' text for Form A2, Questions 10a and 10b, was corrected to read 'Blank if Question 10 INLIVWTH= (Yes)'. DEDs 12 May 15 16:27:14 PST On Form A3 (FVP, TFP, and Temporary Spanish Module FVP), instructions have been added before Question 1 that are intended to clarify which questions need to be completed for a subject who is receiving the Version 3 Form A3 for the first time. Similar instructions have been added to the FVP and TFP Guidebook sections on Form A3, following Question 1 (on genetic mutations), Question 5 07 May 15 16:55:27 PST Congratulation to Junior Investigators, Drs Graff-Radford and Wang, whose proposals were awarded funding for 2015. We urge everyone to watch for NACC's next funding announcement in September 2015 01 May 15 08:43:48 PST Centers should be providing all information requested on Form A3, for all subjects receiving UDS3 follow-ups for the first time, even if similar information has been provided for their UDS v2 visits. Yes must be indicated for questions 1, 5, 6a (if subject has siblings), and 7a (if subject has children), and the subsequent questions must be answered. 30 Apr 15 13:03:29 PST The worksheet for the Benson Complex Figure Copy (Immediate) test has been revised to be consistent with the Instructions for the Neuropsychological Battery. The directions on the worksheet now state that a maximum of 4 minutes should be allowed for the subject to complete the drawing. This affects both the C1 battery and the C2 battery. Revised documents are available on the NACC 27 Apr 15 15:19:01 PST 1.)In the DEDs for IVP, FVP, TFP: On Form A3, allowable codes for all age at death and age of onset variables were changed to 0-110. 2.) In the FVP DED section on Form C1, the question number for data element TRAILB was corrected to 8B. 3.) In FTLD Module Forms C2F, C4F, C5F, and C6F (IV and FV), it was made explicit that 88=Unknown (or 88.88=Unknown) is an allowable code for various 03 Apr 15 16:39:53 PST Starting today, NACC is introducing a list of changes inside the cover of each UDS document. This is intended to help Centers track the changes made since UDS3 was implemented and to help users know whether they are using the most current version of a given document. 03 Apr 15 16:13:35 PST Visit the NACC website to download your copy of the 2015 ADC Personnel Directory (on the ADC home page, under ADC ADMINISTRATION, click 'Personnel Directory'). In it you'll find up-to-date listings of the staff at all the ADCs, arranged by core, complete lists of the ADC Directors and Core Leaders, and contact information for key personnel at NIA, NCRAD, NACC, and all the 03 Apr 15 09:40:18 PST 1. FVP DED correction: In the PACKET variable in the FVP form header, the allowable code field has been corrected to F = Follow-up Visit Packet. 2. FVP DED correction: For Form D1, Questions 37 through 39b were inadvertently omitted and have been restored. 30 Mar 15 10:19:38 PST The Instructions for the Neuropsychological Battery (Forms C1 and C2) have been updated as follows: 1.) The erroneous reference to multiple versions of the Trail Making Test have been removed (Form C1 and Form C2 Instructions). 2.) Two alternative correct responses for items on the MINT have been added (C2 Instructions). 20 Mar 15 12:07:54 PST As a temporary accommodation for newly enrolled Spanish speaking subjects, ADCs may use the Spanish UDS 2 IVP until version 3 is available. ADCs MUST continue to use the UDS 3 IVP for all other newly enrolled subjects. 19 Mar 15 14:52:32 PST A small correction was made to the Instructions for the Neuropsychological Battery (Forms C1 and C2). More significant corrections were made several FTLD Module Forms -- changes that affect the forms only, not the Guidebook, DED, or Data Template. For more details, please visit the NACC website. 12 Mar 15 17:08:42 PST In response to questions from the Centers, the CTF has provided some additional information in the Instructions for the Neuropsychological Battery (for both Forms C1 and C2). These changes are also addressed in the UDS3 QA page on the NACC website. In addition, a small correction was made to the DED for the follow-up visit packet. Details can be found at 11 Mar 15 10:36:36 PST The UDS3 Data Element Dictionaries (DEDs) now reflect the following two corrections: -- IVP and FVP: Form C2, Question 12d, a blank statement was removed. -- IVP, FVP, and TFP: Form D2, Question 23, option of 8=Not assessed was 06 Mar 15 16:10:26 PST The NACC website now features a Temporary Spanish Module FVP that can be used with Spanish-speaking participants beginning March 15. Also posted are normative data for the UDS3 neuropsychological batteries. To download these items and to see a complete list of all corrections to the UDS forms and documentation, please visit the NACC website. 04 Mar 15 10:54:01 PST Registration for the 2015 Spring ADC Meeting is now open to ADC personnel. The meeting is scheduled for Friday and Saturday, April 17 and 18, at the Marriott Marquis Hotel in Washington, DC. More information: naccmail@uw.edu. 04 Mar 15 10:30:08 PST The final versions of all UDS3 forms and documents are now available on the NACC website at https://www.alz.washington.edu/NONMEMBER/UDS/DOCS/VER3/UDS3formsanddoc.html. These are the versions that should be used for subjects seen on or after the UDS3 implementation date of March 15, 2015. 19 Feb 15 09:26:31 PST Because of the severe winter weather in New England and the Midwest, the implementation date for UDS3 has been postponed to March 15, 2015. All UDS visits that begin on or after that date must be conducted with the Version 3.0 UDS forms. 18 Feb 15 15:06:06 PST Greg Jicha of University of Kentucky has been elected the newest member of the ADC Clinical Core Steering Committee. Welcome, Greg, and many thanks to Steven Arnold, who is rotating off the committee. 18 Feb 15 10:27:07 PST NACC is hiring a Research Consultant. For more information, please see the official posting on the University of Washington website at http://tinyurl.com/lvsnpkz 09 Jan 15 10:21:36 PST NACC has expanded its sMRI resources to include calculated volume data for nearly 600 UDS subjects, half of whom have multiple MRIs. We plan to calculate volumes for the rest of the subjects in this group and, going forward, for all new subjects whose DICOM images are submitted. To request these data, submit a data request on the NACC website. To explore NACC's MRI images, visit 01 Dec 14 14:48:52 PST Visit the NACC website to download the draft DEDs and Data Templates for the IVP, FVP, and TFP. Also available are revised UDS3 forms, dated November 13. These reflect a few small changes made since the October 20 forms were posted. See the website for a complete list of the changes. 17 Nov 14 12:51:39 PST As a reminder, UDS3 form packets (IVP, FVP, and TFP) can now be downloaded at: https://www.alz.washington.edu/NONMEMBER/UDS/DOCS/VER3/UDS3formsanddoc.html. In addition to the forms, this web page contains links to a UDS3 implementation time line, a summary of changes from UDS2 to UDS3, and several other references. 27 Oct 14 13:20:44 PST NACC is pleased to announce the following funding opportunities for 2015: one collaborative project involving at least three ADCs ($300,000 total award) and junior investigator projects based on secondary analysis of NACC data ($30,000 per project). For more information and an application, please go to https://www.alz.washington.edu/NONMEMBER/INVEST/newopps.html 21 Oct 14 15:47:41 PST The NACC Steering Committee has recently completed its selection of new members to serve on the NACC Scientific Review Committee, and we are pleased to welcome Richard Perrin, Munro Cullum, Julia Crook, Xiaodong Luo, Sharon Xie, Nilufer Ertekin-Taner, and Erik Musiek. 20 Oct 14 16:03:04 PST NACC is among the collaborators discussed in today's 'Inside NIA' blog post by Marilyn Miller, Program Director, Division of Neuroscience, NIA/NIH. The post focuses on NIAGADS and the many organizations that contribute clinical and genetic data to advance research in AD and associated diseases. Find the post at http://www.nia.nih.gov/research/blog/2014/10/niagads-we-have-data. 01 Oct 14 15:43:54 PST All 27 active ADCs responded to the Data Core survey sent out in July 2014. The results are summarized at https://www.alz.washington.edu/MEMBER/sitesd.htm (the top bullet point links to the survey results). Thanks to all of the Data Cores for their participation. 30 Sep 14 12:07:59 PST Please welcome Amanda Burden as the newest member of the ADC Administrators Steering Committee. We wish to express our thanks to Mary Fern Waechter and Dana Swenson-Dravis, who will be rotating off the committee after the Fall meeting. 29 Sep 14 11:22:29 PST NACC has updated the lists of eligible DNA and bloods samples for submission to NCRAD as of the September 1, 2014 NACC data. You can find them in the Phase 2 section on the NACC website. 15 Sep 14 09:45:07 PST To support ADC recruitment efforts, the NIA ADEAR Center has a new booklet for consumers on participating in Alzheimer???s research: . For a supply of the booklets, call the ADEAR Center at 1-800-438-4380. 15 Sep 14 09:39:07 PST David Knopman of Mayo Clinic has been elected to the ADC Executive Committee, and David Holtzman will join the NACC Steering Committee. Many thanks to Linda VanEldik and Alison Goate for their service. 26 Aug 14 12:24:07 PST Please welcome Eddie Lee of University of Pennsylvania as the newest member of the ADC NP Core Steering Committee. We wish to express our thanks to Julie Schneider, who will be rotating off the committee after the 2014 Fall ADC Meeting. 26 Aug 14 12:11:06 PST Please welcome Josh Grill and Mary Quiceno as the newest members of the ADC ORE Core Leaders Steering Committee. We wish to express our thanks to Mary Guerriero Austrom and Jennifer Lingler who will be rotating off the committee after the fall meeting. 21 Aug 14 09:39:07 PST Registration forms and preliminary agendas have been distributed for the 2014 Fall ADC Meeting October 10 and 11 at the Renaissance Baltimore Harborplace Hotel. For more information, please email naccmail@uw.edu. 13 Aug 14 09:08:11 PST NCRAD has recently genotyped APOE on more than 2,500 subjects. The updated APOE files have been posted and can be downloaded from the NACC website. 13 Aug 14 09:03:11 PST We will be uploading a redesigned Researcher Website this afternoon, so you may experience some disruptions if you visit the NACC website today. If you get a chance in the next few days, please take a look at the new Researcher pages. We've improved the site's organization and usability and enhanced our interactive tools. We apologize for any inconvenience as we make this upgrade. 30 Jul 14 10:06:38 PST A new online report provides an easy-to-read overview of recent National Institutes of Health-funded Alzheimer???s disease research advances and new initiatives. Issued by the National Institute on Aging (NIA) at the NIH, the annual report describes research momentum, explores new research priorities, and summarizes recent advances. Find the report at 21 Jul 14 11:28:10 PST The final version of the NIA Biospecimen Best Practices Series on induced pluripotent stem cell protocols has just been published. A link to the PDF can be found on NACC's ADC homepage. 24 Jun 14 16:51:09 PST Steve Edland of UCSD is joining the ADC Data Core Leaders Steering Committee as its newest member. We welcome Steve and extend our thanks to Hiroko Dodge, who will rotate off the committee after the Fall ADC Meeting. 16 Jun 14 14:23:34 PST The June 1, 2014 freeze of the UDS and NP data sets has been completed. The UDS has 30,585 initial visits and 57,827 follow-up visits in the database, the Neuropathology database has 14,035 NP forms. 12 Jun 14 10:55:49 PST Are you presenting at AAIC? If you are -- and if the work being presented directly involves NACC -- we would like a copy of your abstract (send by June 12 to connorm@uw.edu). Specifically, we are interested in work that: 1.)makes use of data from the NACC database --OR-- 2.) has resulted from a NACC-funded Collaborative Grant. (A publication using ADGC GWAS data would not qualify 03 Jun 14 13:15:45 PST Data Core Leaders are invited to submit nominations for the Data Core Steering Committee (replacing Hiroko Dodge, who will rotate off the Committee after the Fall 2014 ADC meetings.) The Data Core Leader who wins the election will serve a three-year term, ending Fall 2017. In the second year of their term they serve as Chair of the Steering Committee, with responsibility for establishing 03 Jun 14 11:51:55 PST On June 1, NACC froze the UDS and NP data. Reports summarizing the data held at NACC were sent to each Center, with signed certification forms due on June 6. 03 Jun 14 09:33:24 PST Today, March 31, is the last day for Centers to administer the Crosswalk Study. Tuesday, April 8, will be the last day for Crosswalk data submission. Many thanks to the Centers that participated in this important effort. 31 Mar 14 14:36:05 PST The Guidebook text on Question 11d, on Alzheimer's disease neuropathologic change, has been revised under the guidance of the NP Core Leaders Steering Committee. NP Cores are asked to replace their current guidebooks with the version now posted on the NACC website, with a 'last modified' date of March 12, 2014 on the cover. 13 Mar 14 10:50:31 PST Register now for the 2014 Spring ADC Meeting being held April 25 and 26 at the Philadelphia Marriott Downtown. All ADC personnel are welcome to attend. For preliminary agendas and registration forms, please write to naccmail@uw.edu. 04 Mar 14 11:10:34 PST The NACC website will be down from noon to 4pm PST this Friday, March 7, for a server upgrade. We apologize for any inconvenience this may cause. 04 Mar 14 11:09:31 PST NACC is pleased to announce that research structural MRI files are now available for a subset of UDS subjects. For more details, please visit https://www.alz.washington.edu/WEB/mri-main.html. 21 Feb 14 12:10:19 PST Cynthia Carlsson of University of Wisconsin will join the ADC Clinical Core Steering Committee, also becoming a de facto member of the ADC Clinical Task Force. She replaces Greg Jicha, who rotates off the committee after the 2014 Spring ADC Meeting. 21 Feb 14 12:06:08 PST The currently active RFAs for ADRCs and ADCCs have been revised to include more emphasis on the sharing of blood and DNA. For more details, see: http://grants.nih.gov/grants/guide/notice-files/NOT-AG-14-007.html and http://grants.nih.gov/grants/guide/notice-files/NOT-AG-14-006.html. 05 Feb 14 13:42:44 PST This Friday, February 7, the NACC website will be down from 2:00 to 4:00 p.m. Pacific Time for a server upgrade. We apologize for any inconvenience this may cause. 04 Feb 14 13:26:37 PST NACC has just performed an interim analysis to assess the range of MMSE scores represented by the submissions so far. Much of the data we have received are from subjects with an MMSE score of over 27. Certainly these data will help us fine-tune scores for cognitively normal subjects. However, for a meaningful crosswalk study, more data are needed from subjects with MMSE scores in the 30 Jan 14 14:30:19 PST We ask that your UDS FTLD Module cases be submitted to the 'current' UDS database (not just the 'working' database, where errors are checked) by March 31, 2014 in order to allow time for subcontract modifications to include your $300/case. Please coordinate with your Data Core to make sure all of the cases you have enrolled in the FTLD Module have actually been error processed and 28 Jan 14 09:28:45 PST P30: http://grants.nih.gov/grants/guide/rfa-files/RFA-AG-15-001.html P50: http://grants.nih.gov/grants/guide/rfa-files/RFA-AG-15-002.html 16 Jan 14 13:30:03 PST The 2014 ADC Personnel Directory can be downloaded from the NACC website. From the home page, choose ADCs and then look for 'Personnel Directory' under 'ADC Administration' in the left-hand menu. Please note that a NACC account is needed to access the directory. If you need a NACC account, please email naccmail@uw.edu. 16 Jan 14 13:27:01 PST The NP Steering Committee has released its revision of the new Version 10 NACC Neuropathology Form. The Form, Guidebook, and other documents can be found on the NACC website. Version 10 will be required for autopsies conducted on or after January 27, 2014. 13 Jan 14 11:27:53 PST Neurology Today has released a list, chosen by its editorial advisory board, of the 17 most important advances of 2013. Of the three projects that related to Alzheimer's disease, two made use of NACC data and were led by researchers at the ADCs and within NACC. For more on the two projects (one by Monsell et al. and one by Toledo et al.), go to 20 Dec 13 11:43:52 PST The Office of Research on Women's Health (ORWH) announces the availability of administrative supplements to support research highlighting the impact of sex/gender differences (or similarities) and/or sex and gender factors in human health and illness, including preclinical, clinical and behavioral studies. For more information, go to 19 Dec 13 12:51:11 PST As planned, the documents related to the Crosswalk Study have been temporarily withdrawn for revision by Sandra Weintraub in response to ADC feedback during the feasibility phase. The revisions are minor, with no test items or data elements added or removed. New documents will be posted on the NACC website by January 1, 2014, whereupon data collection will begin. NACC will notify the 16 Dec 13 12:12:32 PST Two call in dates are being offered Dec 12 1-2:30pm Central and Dec 16 12-1:30pm Central. Contact your ADC Administrator for further participation details. 02 Dec 13 12:52:25 PST NACC has frozen both the UDS and NP current databases, and ADC certification reports will be distributed December 2. Certification forms are due December 6. ADC Directors should sign the UDS certification form, and ADC NP Core Leaders should sign the NP certification form. 02 Dec 13 12:30:10 PST Those involved in administering the UDS3 Crosswalk Study are urged to leave comments and questions about the test instructions and scoring. Go to the Clinical Bulletin Board on the NACC website by clicking ADCs, then Interviewers/Clinicians, then Bulletin Board. Leave comments under the topic UDS 3.0 cross-walk feedback. Comments will be addressed in a conference call 19 Nov 13 17:06:44 PST Presentations from the 2013 Fall ADC Meeting held Oct. 11 and 12 in New Orleans are now available on the NACC website. On the ADCs home page, choose 'ADC Administration' and then 'Past Presentations.' 23 Oct 13 14:33:26 PST At the 2013 Fall ADC Meeting on October 12 in New Orleans, despite having obtained multiple rounds of comments from the Neuropathology Cores since the form was first presented in fall 2012, the NP Core Steering Committee agreed to consider some additional small revisions in the new NP Form and Guidebook. Therefore they have asked NACC to withdraw -- and Centers to stop using -- the 16 Oct 13 13:02:13 PST The new v10 Neuropathology Form posted on the NACC website now can be filled out by the pathologist on a computer and then printed out or saved locally. 25 Sep 13 15:30:36 PST The new v10 Coding Guidebook for the Neuropathology Form has been revised to include information on minimum brain regions to be sampled. The most current version of the guidebook, which is now available on the NACC website, lists on its cover a last-modified date of September 23, 2013. 25 Sep 13 15:27:11 PST Krista Moulder of Washington University in St. Louis is the newest member of the ADC Administrators Steering Committee. Welcome, Krista, and thanks to Jayne LaGrande and Elena Taylor Munoz, who will rotate off the committee after the 2013 Fall ADC Meeting. 17 Sep 13 11:23:31 PST Today NACC distributed the revised Version 10 NP Form and documentation and announced an implementation date of October 1, 2013. All autopsies conducted on or after that date must be submitted to NACC using the new form. 13 Sep 13 10:57:23 PST NACC is pleased to announce that v10 of the Neuropathology Form has been distributed to Centers, along with its Coding Guidebook, Data Element Dictionary, and Data Template. Packets using the new form will be accepted beginning September 18. Autopsies occurring on or after September 18 must be submitted using the new form. 05 Sep 13 15:02:30 PST Congratulations to the newly elected committee members: NP Core Steering Committee: Julia Kofler Ed Core Steering Committee: Raj Shah ADC Executive Committee: Jeffrey Kay NACC Steering Committee: Andrew Saykin 21 Aug 13 13:38:07 PST The 2013 Fall ADC Meeting will be held October 11 and 12 at the Westin Canal Place in New Orleans, LA. A meeting announcement was emailed today to ADC personnel with a link to the website where you can reserve discounted rooms through the ADCS. If you didn't receive a copy, email NACC at naccmail@uw.edu. 11 Jul 13 12:41:06 PST The coding guidebooks for FTLD Module have been revised as of June 4, 2013 to incorporate new criteria for evaluating probable or possible corticobasal degeneration. The new criteria apply to Form B3F (Supplemental UPDRS), Questions A5-A9. 04 Jun 13 15:51:05 PST The Data Core Steering Committee welcomes Jonathan Mahnken of University of Kansas as its newest member. Jon replaces Chengie Xiong, who will rotate off the committee after the Fall ADC Meeting. The committee thanks Chengie for his service. 23 May 13 09:46:13 PST The ADC Clinical Task Force is announcing the launch of a 'crosswalk study' to establish equivalencies between the UDS 2 neuropsychological tests and the non-proprietary tests that have been chosen for UDS 3. All ADCs are urged to participate in this important project. For more information, email naccmail@uw.edu. 24 Apr 13 09:53:54 PST The full packet of FTLD Module forms for follow-up visits is now available on the NACC website at https://www.alz.washington.edu/NONMEMBER/UDS/DOCS/VER2/ftldv2.html. Also posted are the Coding Guidebook, with fully annotated FVP forms, and the DED and Data Template. 02 Apr 13 10:29:48 PST Visit the NACC website at https://www.alz.washington.edu/NONMEMBER/present.html to see presentations from the Directors Meeting, Administrators Meeting, and Clinical Core Leaders Meeting given March 15-16 during the 2013 Spring ADC Meeting in San Diego, CA. 27 Mar 13 09:22:41 PST A project produced by the National Institute on Aging and the Administration for Community Living is competing to win the People's Choice Award of HHSinnovates. The project, 'Connecting to Combat Alzheimer's,' also involved the ADCs at Rush and Northwestern. Voting closes today, so review the finalists and vote now at http://www.hhs.gov/open/initiatives/hhsinnovates/index.html. 08 Mar 13 14:07:27 PST David Knopman, MD of the Mayo Clinic has been appointed by NIA to the ADC Clinical Task Force (CTF), filling the vacancy left by Jeff Cummings. Dr. Knopman will serve on the CTF until it is disbanded or a new appointment is made. 21 Feb 13 09:57:15 PST Robert Sweet, MD of the University of Pittsburgh has been elected to membership in the ADC Clinical Core Steering Committee, where he will serve a five-year term. We welcome Dr. Sweet and thank all who took part in the election process. 21 Feb 13 09:42:26 PST All ADC personnel are invited to the 2013 Spring ADC Meeting being held Friday and Saturday, March 15 and 16, at the Mariott Marquis and Marina in San Diego. For meeting agendas and registration forms, email naccmail@uw.edu. 01 Feb 13 10:34:14 PST The new edition of the ADC Personnel Directory is now available on the NACC website at https://www.alz.washington.edu/MEMBER/pers.html. 17 Jan 13 11:23:57 PST The site visit portion of the 2013 Spring ADC Meeting on March 15 will be hosted by the Alzheimer's Disease Cooperative Study (ADCS). The schedule on the NACC website has been updated to include this information (https://www.alz.washington.edu/NONMEMBER/calen.html). 11 Jan 13 12:16:37 PST New deadlines for Year 4 of the U01 GWAS project have been posted at the NACC website: April 30, ADGC Yr 4 samples must be received by NCRAD March 18, all invoices must be submitted to UPenn March 4, final Q4 reimbursement notices will be distributed by NACC. 10 Jan 13 13:33:22 PST Join colleagues March 15 and 16 for the annual spring meeting of the ADCs at the San Diego Marriott Marquis Marina Hotel. Email naccmail@uw.edu for a copy of the official meeting announcement. 10 Jan 13 12:48:03 PST Researchers interested in applying for 2013 NACC funding now have until Monday, Nov. 12 to file a Letter of Intent. The LOI is optional, but it is strongly encouraged because it helps NACC plan its Scientific Review Session. For more information and an application for the Junior Investigator or Collaborative Grant, please go to 31 Oct 12 14:43:43 PST For the two gateway questions, 1 and 14, 'Not evaluated' is no longer a possible response. For normal controls, choose 'No'. 24 Oct 12 15:11:23 PST Presentations from the 2012 Fall ADC Meeting held Oct. 5 and 6 in Boston are now available on the NACC website. From the ADC home page, click 'ADC Administration,' and then 'Past Presentations.' 22 Oct 12 09:53:08 PST Due to contractual issues, we now require users of the UDS DrugID Look-up tool to have an account on the NACC website. We apologize for any inconvenience. Those who need an account should send a request to naccmail@uw.edu. 16 Oct 12 10:32:49 PST The NACC Steering Committee has selected four new members to serve on the NACC Scientific Review Committee. We are pleased to welcome David Fardo, Marilou Gorno-Tempini, Brad Hyman, and Charles White III. We thank all nominees for participating and thank outgoing members Bruno Giordani, Patricia Kramer, Bill Seeley, and Kristine Yaffee for their hard work and dedication. 11 Oct 12 13:30:20 PST NACC is requesting applications for two types of research projects, collaborative and junior investigator. Deadline for submitting a letter of intent (optional) is 11/5/2012 application deadline is 12/18/2102. For more information and the application form, visit the NACC website. https://www.alz.washington.edu/NONMEMBER/INVEST/newopps.html 11 Oct 12 12:24:30 PST Liang Yap of Massachusetts ADRC is the newest elected member of the ADC Administrators Steering Committee. Molly Chinn of University of Washington has also joined the group in a mandatory position. Many thanks to Rosann Costa and Carey Gleason, who will be rotating off the committee after the 2012 Fall ADC Meeting. 19 Sep 12 15:37:11 PST Congratulations to Tom Montine of the University of Washington on his election to the ADC Executive Committee, replacing Richard Mayeux. Congratulations also go to Allan Levey of Emory University, who has just been elected the newest member of the NACC Steering Committee, replacing Oscar Lopez. 21 Aug 12 12:51:07 PST Nigel Cairns of Washington University in St. Louis has been elected to the NP Core Steering Committee, replacing Tom Montine, who is rotating off after the 2012 Fall ADC Meeting. Also elected were James Galvin of New York University and Cordula Dick-Muehlke of UC Irvine, who are the newest members of the Ed Core Steering Committee, replacing Deborah Danner and Howie Rosen, who will 09 Aug 12 11:20:51 PST On the NACC website you can now find a list dates and cities for the spring and fall ADC meetings through 2015. Click ADCs, then ADC Administration, then Future ADC Meetings. 07 Aug 12 09:32:15 PST All ADC personnel are invited to the 2012 Fall ADC Meeting being held Friday and Saturday, October 5 and 6, at the Westin Copley Place in Boston. For meeting agendas and registration form, email naccmail@uw.edu. 06 Aug 12 11:18:01 PST Centers administering the FTLD Module are no longer required to calculate the summary scores for Form C2F, the Social Norms Questionnaire. Instead, the scores are calculated automatically upon submission of the form to NACC. For more information, please see the updated FTLD Coding Guidebook and Neuropsychological Instructions at 01 Aug 12 10:33:17 PST In the LP Study's 'Patient Experience - Follow-up form,' two new questions have been added as question 4 (Was an LP conducted?) and question 5 (Reason LP was not conducted). If you have already submitted data using the original version of this form, you need not submit those data again. 05 Jul 12 15:47:36 PST In Form C3F, the variable name FTDINAPP has been changed to FTDINAPJ. This change is reflected in the FTLD Module data template and DED now posted on the NACC website, with the modification date on the cover of June 18, 2012. 19 Jun 12 09:47:12 PST A new version of the presentation to ADC Administrators -- now including the answers provided by Nina Silverberg and Joe Ellis -- is now posted on the NACC website at https://www.alz.washington.edu/NONMEMBER/SPR12/agendamov.pdf. 23 May 12 12:50:27 PST A link to a video tutorial by M.-Marsel Mesulam, MD on clinical examination of primary progressive aphasia is now available on the NACC website, at https://www.alz.washington.edu/NONMEMBER/FTLD/ppa.html. 22 May 12 10:37:56 PST New files relating to ADGC data can now be found on the NACC website. Files include: APOE from all genotyping done by ADGC for your Center's patients, rounds 1 through 5 IDs of all subjects used in an ADGC GWAS analysis IDs of samples that failed when sent for genotyping and plink files from rounds 1 through 3. Look for the 'ADGC Genotype Files' link on NACC's ADC homepage. 16 May 12 09:43:24 PST Fixed-price subcontracts are no longer necessary for Centers submitting DNA or blood samples, and payment will be issued directly by ADGC. For more details, visit the NACC website and click 'GWAS Phase 2' on the ADCs homepage. 10 May 12 10:09:41 PST Shane Pankratz, PhD, of the Mayo Clinic has been elected as a member of the ADC Data Core Steering Committee. We welcome him and express our thanks to Carl Pieper, DrPH, of Duke University, who will rotate off the committee after the 2012 Fall ADC Meeting. 07 May 12 10:05:55 PST Visit the NACC website to see the outstanding presentations from the 2012 Spring ADC Meeting in New Orleans. From the NACC home page, choose 'ADCs,' then 'ADC Administration,' and then 'Past Presentations.' 07 May 12 09:46:52 PST Visit the NACC website to download the April edition of the ADC Personnel Directory, listing contact information for key personnel at all the ADCs, as well as NIA, NACC, and NCRAD. From the ADC home page, click on ADC ADMINISTRATION on left, and then on Personnel Directory. 09 Apr 12 10:18:08 PST The Data Template and Data Element Dictionary for NACC's new FTLD Module are now available on the NACC website at https://www.alz.washington.edu/WEB/forms-ftld.html. 15 Mar 12 10:15:09 PST All ADC personnel are invited to attend the 2012 Spring ADC Meeting April 20 and 21 in New Orleans, LA. Open sessions are planned for Administrators, Directors, and Clinical Core Leaders. In addition, a virtual site visit will be presented by University of Pittsburgh highlighting initiatives at their ADC. The meeting will end with the traditional Directors Dinner, open to all 12 Mar 12 10:14:02 PST Clinician forms and documentation for the FTLD Module are available again on the NACC website following some small revisions. Documentation for the Data Cores should be posted in about a week. 24 Feb 12 09:35:53 PST Jeff Burns of University of Kansas has been elected to the ADC Clinical Task Force. He replaces Bruce Miller, whose term ends in spring 2012. We welcome Dr. Burns and thank Dr. Miller for his service to the group. 21 Feb 12 14:11:28 PST New versions of two neuropsychological forms, C4F and C6F, have been posted on the NACC website to correct two errors. On Form C4F, the shaded box was missing for the BIS Total Score. And on Form C6F, the final question, Question 13, was missing. Please visit https://www.alz.washington.edu/WEB/forms-ftld.html to download the corrected versions. 09 Feb 12 09:34:09 PST We are please to announce that the forms and much of the documentation for NACC's new FTLD Module to the UDS have been posted at www.alz.washington.edu/NONMEMBER/ftldmod.html, along with a draft implementation plan. Interested Centers are encouraged to familiarize themselves with the documents. 03 Feb 12 17:39:34 PST The new edition of the ADC Personnel Directory is now available for download at the NACC website at https://www.alz.washington.edu/MEMBER/pers.html. With full contact information for more than 600 ADC staff members, it's the best way to stay in touch with the staff in the ADCs. Download it and print it, or save the fully bookmarked PDF on your local computer for easy reference. 26 Jan 12 15:59:35 PST The Spring ADC Meeting April 20-21, 2012 in New Orleans will begin with a 'virtual site visit' presented by the University of Pittsburgh at our conference hotel, the Hilton New Orleans Riverside. Following continental breakfast at 8am, presenters will give us a look at the latest initiatives at the University of Pittsburgh ADC. The site visit will conclude at noon. Look 26 Jan 12 11:01:55 PST The Spring 2012 ADC Meeting will be held Friday and Saturday, April 20 and 21, at the Hilton New Orleans Riverside Hotel. All interested ADC personnel are invited to attend. For a copy of the meeting announcement, please email naccmail@uw.edu. 06 Jan 12 13:43:44 PST NACC has updated the lists of eligible IDs for DNA and blood sample submission. These lists add IDs from May 2011 to December 2011 and can be accessed in the Phase 2 section on the NACC website: https://www.alz.washington.edu/GWASPHASE2/gwasphase2.html 19 Dec 11 12:23:09 PST Howard Rosen, PhD of University of California, San Francisco has been elected chair of the ADC Education Core Steering Committee, serving until fall 2012. He replaces Ladson Hinton, MD of University of California, Davis. Many thanks to Ladson for his outstanding service in this role. 14 Nov 11 16:40:15 PST In order to keep up with increased computing demand, NACC is installing a more powerful server. At 9pm PST on Thursday, Nov. 3, we will shut down the old server in order to move to the new server. We anticipate that the NACC website and server will be unavailable from 9pm Nov. 3 to the evening of Nov. 4. If need be, we will work the weekend to have the server ready for Monday. 31 Oct 11 14:20:47 PST Visit the NACC website for presentations from the Fall ADC Meeting September 23 and 24, 2011 in San Diego. On NACC's ADC home page, 'ADC Administration,' and then 'Past presentations.' 12 Oct 11 16:17:11 PST From the NACC home page, click 'ADCs', then 'ADC Administration', and then 'Personnel Directory' for the latest edition of the directory. 11 Oct 11 11:29:17 PST NACC is requesting applications for two kinds of projects to be conducted in FY2012 - a collaborative grant involving three or more ADCs, and a junior investigator grant, focusing on secondary analysis of NACC data. Application deadline is January 13, 2012. For more information, go to https://www.alz.washington.edu/NONMEMBER/INVEST/newopps.html 27 Sep 11 16:50:50 PST At the September 24 meeting of the NACC Steering Committee, Charles DeCarli, MD, was selected to chair the committee. Dr. DeCarli, director of the ADC at University of California, Davis, will serve as chair through fall 2013. NACC thanks outgoing chair Richard Mayeux, MD, MSc, of Columbia University for his service and dedication. 27 Sep 11 09:45:39 PST The NACC Steering Committee has selected five new members for the Scientific Review Committee from a strong field of candidates. New members are Nigel Cairns, Sarah Farias, Jonathan Mahnken, Shane Pankratz, and Catherine Roe. We welcome them, and we also express our thanks to outgoing members Hiroko Dodge, Robert Green, Lee Martin, and Chengjie Xiong for their hard work and 26 Sep 11 16:38:47 PST The NACC website now features new lists, based on the September 1 data freeze, of patient IDs eligible for GWAS reimbursement. On NACC's ADC home page, click 'GWAS Phase 2' on the right. The ADGC thanks the ADCs for their continued efforts. 14 Sep 11 09:40:18 PST The NACC UDS and NP data freezes have now been completed. The NACC Databases are open for all centers to submit and finalize new data. Since the June 2011 data freeze, 562 new initial visits and 2,452 new follow-up visits have been added to the UDS database, and 129 new NP forms have been 09 Sep 11 14:01:39 PST Following the recent elections, new member lists have been posted for the NACC Committees (the Steering Committee and the Scientific Review Committee) as well as the ADC Committees. To see the rosters, visit the NACC ADC home page. For the NACC Committees, click 'About NACC' in the top bar. For the ADC Committees, click 'ADC Administration' then 'ADC Steering Committees.' Welcome to the new 02 Sep 11 13:26:59 PST Education Core Leaders are gathering Friday, September 23, for a dinner following their meeting during the Fall ADC Meeting in San Diego. Details were distributed yesterday on the Ed Core Leaders listserv. If you missed the announcement and would like more information, please contact Dorothy Edwards, Ed Core Co-leader at University of Wisconsin (dfedwards@wisc.edu). 02 Sep 11 09:51:37 PST A new study on lumbar puncture is being conducted among the ADCs. Participation in part of the study, The LP Patient Experience, is supported by the Alzheimer's Association, and reimbursement will be available. Details on the reimbursement will be posted soon at the NACC website. Participation is also requested by all ADCs in two additional brief questionnaires. For more 02 Sep 11 09:44:03 PST On September 1, NACC froze both the UDS and NP current databases. Certification reports will be sent today, September 2, in two separate emails (one for UDS, one for NP). Please review the reports to confirm that the data held at NACC are an accurate representation of the data at your Center if not, contact NACC immediately. For this freeze, no signed certification wll be required. 02 Sep 11 09:39:43 PST For a copy of the report, please contact your Center Administrator. 09 Aug 11 16:17:03 PST Please join us for the Fall ADC Meeting September 23 and 24, 2011 in San Diego. Registration forms for the meeting and the Directors Dinner were distributed by email today. If you need a copy, see your Center Administrator, or email NACC at naccmail@uw.edu. 09 Aug 11 16:14:51 PST Visit the NACC website for the latest edition of the ADC Personnel Directory. On the ADC home page, click 'ADC Administration,' then 'Personnel Directory.' 01 Aug 11 09:21:04 PST All ADC staff are invited to attend the 2011 Fall ADC Meeting, to be held Friday and Saturday, Sept. 23 and 24, at the US Grant Hotel in San Diego, CA. Registration will open around August 9. For a copy of the official meeting announcement with more details on the meeting and the hotel, please contact your Center Administrator, or email NACC at naccmail@uw.edu. 27 Jul 11 11:09:38 PST NACC has just distributed the monthly UDS report for July 2011. If you would like to see a copy of the report, please contact your Center Administrator. 08 Jul 11 16:22:28 PST NACC has compiled a list of ICAD 2011 presentations that relate to NACC and the ADCs in various ways. Some use data from the NACC UDS some draw from the ADGC GWAS, which involves NACC data and some have resulted from projects that were funded by NACC. If you'll be in Paris, please plan to catch as many of these as you can. For a copy of the list, email us at naccmail@uw.edu. 07 Jul 11 12:46:09 PST Data Managers now have expanded options in downloading data in XML format via the UDS Submission System. There is a new option for a NACC-specific schema, courtesy of Duke University. Downloads also have an option of being submitted as batch jobs to avoid potential timeout errors with large data files. The XML option is found in the 'Download Data' section of the Submission System. 24 Jun 11 14:56:50 PST NACC has just distributed the Monthly UDS Report for June, along with the Quarterly NP Quality Assurance Report. If you would like to see a copy of the reports, please contact your Center Administrator. 22 Jun 11 10:29:41 PST On June 1, 2011 NACC froze both the UDS and NP Current databases. Data certification reports were sent today, June 2. Centers should contact NACC promptly if the reports do not accurately reflect their data. NACC will generate final reports for NIA on June 9. For a copy of the reports, please contact your Center Administrator. 02 Jun 11 16:46:15 PST NACC has openings for a research scientist (Req. No. 73676) and a database management systems programmer (Req. No. 73579). Apply online at the University of Washington employment website (http://www.washington.edu/admin/hr/jobs/apl/index.html), and please share this information with colleagues who may be interested. 05 May 11 13:19:30 PST At the Spring ADC Meeting, David Knopman reported on progress made so far on the FTD Module to the UDS. That presentation is now available on the NACC website. To see it, visit the NACC home page, click on ADCs, then on ADC Administration, and then on Past Presentations. 02 May 11 14:44:02 PST From the NACC home page, click 'ADCs', then 'ADC Administration', and then 'Personnel Directory' for the latest edition of the directory. 27 Apr 11 12:57:47 PST Visit the NACC website for presentations from the Spring ADC Meeting April 6 and 7, 2011 in Los Angeles. On the NACC home page, select 'ADCs,' then 'ADC Administration,' and then 'Past presentations.' 25 Apr 11 13:27:57 PST The NACC website features a schedule - just updated - of spring and fall ADC meetings dates and cities through 2014. To see the PDF, visit the NACC homepage, select 'ADCs,' then 'ADC Administration,' and then 'Future ADC meetings and other events.' 25 Apr 11 13:08:51 PST NACC has selected three projects to fund during FY2011. One is a collaborative project led by Teresa Gomez-Isla, MD, PhD, of Massachusetts ADRC and involving collaborators at University of Pittsburgh and Mayo Clinic. The other two chosen for funding are junior investigator (secondary-analysis) projects, one led by Heather Romero, PhD, of Duke University, and the other by Katherine Gifford, 12 Apr 11 13:58:47 PST On Monday, March 21, the NACC website will have a new homepage, leading to both the familiar ADCs area and a new website designed for researchers. The new researchers area is intended to make it easier to access NACC data. Please take 18 Mar 11 12:59:41 PST The Monthly UDS Report for March has been distributed. If you would like to see a copy, please contact your Center Administrator. 14 Mar 11 10:57:27 PST On March 1, 2011 NACC froze both the UDS and NP Current databases. Data certification reports will be sent March 2. Centers should contact NACC promptly if the reports do not accurately reflect their data. NACC will generate final reports for NIA on March 9. For a copy of the reports, please contact your Center Administrator. 02 Mar 11 09:19:06 PST If you plan to attend the spring ADC Meeting in L.A. on April 6 and 7, be sure to book your room at the Hyatt Regency Century Plaza soon if you would like to reserve a discounted room. The block of rooms was secured by ADCS, which is kindly sharing them with us. Follow this link to the room reservation page. https://resweb.passkey.com/Resweb.do?mode=welcome_ei_neweventID=2563016 01 Mar 11 12:20:57 PST The Monthly UDS Report for February has been distributed. If you would like to see a copy, please contact your Center Administrator. 24 Feb 11 09:48:01 PST The new edition of the ADC Personnel Directory has just been made available on the NACC website. For your copy, go to the NACC home page and click on the top bullet under 'What's New' on the right-hand side of your screen. 22 Feb 11 13:13:55 PST William Haley of Florida ADC has stepped down from the Ed Core Steering Committee. The committee invited the runner-up from last year's election to fill the spot. Howie Rosen of UCSF has graciously agreed to join the committee effective immediately. 14 Feb 11 09:56:48 PST Registration forms and preliminary agendas were emailed today for the 2011 Spring ADC Meeting April 6-7 in Los Angeles, California. All ADC personnel are encouraged to attend. The meeting registration deadline is March 28, and the Directors Dinner deadline is a week earlier, March 21. We look forward to see you in L.A.! 11 Feb 11 12:26:41 PST The NACC Yr. 13 ADC subcontract paperwork is due to NACC by March 1. Instructions for completing the applications have been distributed to ADC Administrators. 01 Feb 11 12:55:06 PST An updated list of NACC-related publications has been posted on the NACC website. In the Investigators/Researchers area, click 'Publications and Submissions,' then 'NACC-related Publications' to see the PDF. 19 Jan 11 13:01:34 PST Visit the NACC website for a new timeline on the review, selection, and announcement of NACC junior investigator and collaborative grants. From the home page, look under 'What's New' on the right, and click NACC FY2011 Funding Opportunities. 19 Jan 11 12:55:27 PST NACC's monthly UDS report for January 2011 has just been distributed. Also included was a short document outlining steps for Centers to take in evaluating and resolving NACC data alerts. If you would like a copy of either document, please contact your Center Administrator. 18 Jan 11 11:38:40 PST The official announcement for the Spring ADC Meeting April 6 and 7, 2011 in Los Angeles will be distributed on or around February 11, once our block of hotel rooms opens up. Remember, this year the spring meeting falls on a Wednesday and Thursday, a departure from our usual Friday-Saturday schedule. 14 Jan 11 13:19:50 PST NACC's UDS monthly report for December 2010 has just been distributed to the ADCs. If you would like a copy of your Center's report, please contact your ADC Administrator. 13 Dec 10 10:14:59 PST On Friday, Dec. 3, NACC distributed UDS and NP data reports with certificates for Centers to sign confirming the data in the December 2010 freeze. The signed certification form must be returned to NACC by Thursday, December 9. If you would like a copy of your Center's report, please contact your Center Administrator. 06 Dec 10 12:15:17 PST Instructions for ADCs to follow in preparing their 2010 Progress Reports can be found on the NACC website. Look on the home page, under 'What's New' in the green navigation box on the right. 29 Nov 10 15:01:03 PST The NACC website posts newsletters from all the ADCs. The latest addition is fall newsletter from Boston University. To see it, and for news from all the other ADCs, go to the NACC website and choose 'Administration' from the left navigation, then 'ADC Newsletters.' 29 Nov 10 13:54:24 PST EdCore personnel might be interested in the resources offered by the National Institute of General Medical Sciences (NIGMS) for evaluating the efficacy of programs. Visit the NIGMS for evaluation tools, how-tos, and other resources. http://www.nighs.nih.gov/evaluation/ 16 Nov 10 11:10:33 PST The NACC UDS report for the month of November has been distributed. If you would like a copy, please contact your ADC Administrator. 16 Nov 10 09:11:45 PST An updated list of NACC-related publications has been posted on the NACC website. In the Investigators/Researchers area, click 'Publications and Submissions,' then 'NACC-related Publications' to see the PDF. 09 Nov 10 14:15:40 PST The next time you request data from the NACC website, you'll find a more streamlined data request procedure. The process was simplified in response to recommendations made at the fall 2010 Steering Committee meeting. Also in the works is a new Researchers area of the website to make it easier for scientists 03 Nov 10 08:42:41 PST Go to the NACC website for the latest update of the ADC Personnel Directory, with listings of directors, core leaders, and other staff at all the ADCs, as well as some of the key people involved in the ADC Program at NIA, NACC, and NCRAD. You'll also find an updated Administrators Contact Sheet. On the NACC home page, just select 'ADC Administration,' and then 'Personnel Directory' to 21 Oct 10 10:33:22 PST Today, the monthly UDS reports for October were distributed to the ADCs. In addition, a summary report on all the Centers was sent to NIA. If you need a copy of your Center's report, please contact your Center Administrator. 11 Oct 10 15:13:52 PST The CDR calculator is a new tool, which has been added to NACC's website. The CDR calculator allows the user to input CDR box scores and submit them to a SAS computer program which returns the global CDR based on the Washington University CDR-assignment algorithm. https://www.alz.washington.edu/cdrnacc.html 05 Oct 10 13:57:53 PST NACC's publication list has just been updated with the addition of Dementia: Continuum or Distinct Entity, by GD Walters, published in the journal Psychology of Aging. For the complete list, visit the NACC website and click Investigators/Researchers, then Publications and Submissions. 29 Sep 10 09:27:17 PST An updated list of future ADC meeting dates and locations has been posted to the NACC website. https://www.alz.washington.edu/NONMEMBER/PDF/adcmtg.pdf 27 Sep 10 10:53:24 PST The NACC website now features presentations made at the Fall ADC Meeting September 10-11 in San Francisco. If you weren't able to attend, this is a great way to find out what was discussed at the meetings of the Education Core Leaders, NP Core Leaders, Directors, NACC/Methods, and Data Core Leaders. https://www.alz.washington.edu/NONMEMBER/FALL10/agenda.pdf 22 Sep 10 10:14:30 PST The UDS Monthly Report for September and the NP Quarterly Report were distributed today. If you need a copy of the report, please contact the Administrator at your ADC. 17 Sep 10 14:58:04 PST NACC is pleased to welcome Steven Arnold, MD, of the University of Pennsylvania to the Scientific Review Committee following his election. He takes the position vacated by Sam Gandy, MD, PhD, of Mount Sinai. NACC is grateful to Sam for his service on the committee. 14 Sep 10 14:12:46 PST Fran Grodstein, MD, of Brigham and Women's Hospital has just joined the NACC Steering Committee as an at-large member, replacing Ken Langa, MD, PhD, of the University of Michigan. The Steering Committee welcomes Fran and extends it thanks to Ken for his service to the committee. 14 Sep 10 14:04:47 PST NACC is pleased to announce new funding opportunities for 2011. See the NACC website for more information on our collaborative project and junior investigator grants. On the NACC home page, check the green WHAT'S NEW box on the right-hand side. 14 Sep 10 12:37:10 PST The UDS Neuropsychology Work Group would like to invite a Chinese-fluent neuropsychologist to join our subcommittee. If you, or someone from your ADC, have had experience designing neuropsychological instruments suitable for administration to Chinese speakers, and an interest in joining the subcommittee, please send an inquiry to Sandy Weintraub, 13 Sep 10 12:22:49 PST A new list has been posted on the NACC website listing the IDs of Phase 2 subjects eligible to have blood specimens submitted to NCRAD. To see the list, along with the new reimbursement and shipping policies, just click GWAS Phase 2 on the NACC home page. 01 Sep 10 12:22:15 PST Elena Taylor Munoz of USC is the newly elected member of the Administrators Steering Committee, replacing Liang Yap, who will step down after the fall ADC meeting. Our thanks go to Courtney McDonald for participating in the process, and to Liang Yap for her outstanding service on the committee. 31 Aug 10 10:46:11 PST Please visit the NACC website for new instructions on shipping blood samples to NCRAD. On the NACC home page, just click GWAS Phase 2 on the right-hand side of the page. 18 Aug 10 12:41:49 PST All ADC personnel are invited to attend the Fall 2010 ADC Meeting in San Francisco, September 10-11. Registration forms and preliminary agendas were emailed last week to all those listed in the ADC Directory. If you're not in the Directory or missed the email, you can request a packet by emailing naccmail@uw.edu. The registration deadlines are Thursday, September 2 (for the 09 Aug 10 15:34:29 PST Visit the NACC website to download the latest version of the ADC Personnel Directory. You'll find it listed under ADMINISTRATION on the left-hand side of the home page. 02 Aug 10 14:36:17 PST The NACC Steering Committee welcomes Mary Sano of Mount Sinai as its newest member. Many thanks to Eric Reiman, who will be stepping down after the Fall 2010 ADC meetings, for his service. 22 Jul 10 11:52:28 PST The ADC Executive Committee welcomes Charles DeCarli of the University of California, Davis as its newest member. Many thanks to Brad Hyman, who will be stepping down after the Fall 2010 ADC meetings, for his service. 22 Jul 10 11:49:59 PST The Education Core Steering Committee welcomes Chengie Xiong of Washington University as its newest member. Many thanks to Sharon Xie, who will be stepping down after the Fall 2010 ADC meetings, for her service. 22 Jul 10 11:45:27 PST The latest publications have been added to our list of all the articles, book chapters, and abstracts that have published that relate to NACC. Take a look at the wide range of work by external researchers using NACC data, researchers engaged in NACC-funded collaborative grants, junior investigators pursuing NACC-funded secondary analyses, and more. https://www.alz.washington.edu/NONMEMBER/PDF/publist.pdf 08 Jul 10 14:45:30 PST If you're headed to Honolulu for ICAD, be sure to see the presentations that related to NACC and the ADCs. Some of these are based on the UDS some use the ADGC GWAS, with uses NACC data and some are the result of projects funded by NACC. For a complete schedule of the presentations, go to the NACC home page and click on the first link under What's New on the right. 08 Jul 10 14:36:24 PST The Education Core Steering Committee welcomes Dorothy Edwards of the University of Wisconsin as its newest member. Many thanks to Marcie Freeman, who is stepping down, for her service. 08 Jul 10 14:32:39 PST Make plans now to attend the fall 2010 ADC Meetings September 10 and 11 at the Palace Hotel in San Francisco. If you didn't receive an emailed meeting announcement, email NACCmail@uw.edu for a copy. It includes information on the agenda and the discount hotel block (reservation deadline July 19). Official registration forms for the meeting and Directors Dinner will go out later this 29 Jun 10 10:04:04 PST All ADCs have certified both their UDS and NP data. Since the March 1, 2010 data freeze 646 new initial visits and 2,497 new follow-up visits have been added to the UDS database, and 179 new NP forms have been added to the Neuropathology database. The new frozen data is now ready to be used by researchers. 18 Jun 10 10:24:02 PST The Clinical Core Steering Committee welcomes new members Steven Arnold, of University of Pennsylvania, and Gregory Jicha, of University of Kentucky. They will take the seats formerly held by John Morris and Elaine Peskind, who are stepping down. Many thanks to John and Elaine for their service and leadership on the committee. For more on the ADC committees, visit the NACC website and 14 Jun 10 15:41:53 PST ADGC has provided updated instructions for the Centers to follow in sending DNA to NCRAD. To see what's changed, please visit the NACC website. From the home page, choose GWAS Phase 2, then Shipping Instructions. The updates are highlighted for you. https://www.alz.washington.edu/GWASPHASE2/shipment.doc 28 May 10 12:40:48 PST Sterling Johnson of the University of Wisconsin has agreed to chair the NACC Publications Committee, succeeding John Ringman of UCLA. In addition, the committee welcomes Felicia Goldstein of Emory University as its newest member. Many thanks to John Ringman for his leadership and service to the committee. 18 May 10 11:48:04 PST Visit the NACC website for an up-to-date list of all NACC-related publications. On the home page, choose 'Publications and Submissions' in the right-hand menu bar for the link to the PDF. 12 May 10 16:02:48 PST Presentations and final agendas from the spring 2010 ADC Meeting in Toronto are now available on the NACC website at https://www.alz.washington.edu/NONMEMBER/SPR10/toronto.pdf https://www.alz.washington.edu/NONMEMBER/SPR10/toronto.pdf 04 May 10 16:02:21 PST NACC has selected three projects to fund during fiscal year 2010. One is a collaborative project led by Linda Boise of OHSU and involving collaborators at three other centers. The other two chosen for funding are junior investigator (secondary analysis) projects, one led by Patrick Brown at Columbia University and the other led by Berneet Kaur at University of California, Davis. See the https://www.alz.washington.edu/NONMEMBER/INVEST/funded.html 16 Apr 10 14:36:00 PST The newest members of the NACC Publications Committee are Bradley Boeve, Sterling Johnson, and Scott Small. NACC extends our sincere thanks to all of the nominees for participating in this process as well as Deborah Blacker, John Olichney and Howard Rosen who have rotated off the committee. 12 Apr 10 11:56:09 PST Visit the NACC website to download the latest edition of the ADC Personnel Directory, listing contact information for key personnel at all the ADCs, as well as NIA, NACC, and NCRAD. From the home page, click on ADC ADMINISTRATION on left, and then on Personnel Directory. 06 Apr 10 10:06:12 PST The 2011 spring meeting of ADC Directors, Clinical Core Leaders, and Administrators will be held April 6-7 in Los Angeles, Calif. All ADC personnel are invited to attend. For more information, please visit the NACC website. https://www.alz.washington.edu/NONMEMBER/PDF/adcmtg.pdf 05 Apr 10 16:53:38 PST The Education Core Steering Committee welcomes new member Angela Jefferson, who takes the position vacated by Jim Galvin (Jim is now Associate Director at NYU and no longer eligible to serve on the committee). And because Jim's departure also meant the Committee would need a new Chair, the members nominated current member Ladson Hinton, who has agreed to serve in that position until fall 2011. 17 Mar 10 16:33:32 PST On March 1, 2010 NACC froze both the UDS and NP Current databases. The certification reports were sent in two separate emails on March 3rd. The UDS report was sent to Center Directors for signature, and the NP report was sent to the NP Core Leaders for signature. The certification forms deadline is March 10, 2010. 04 Mar 10 14:40:00 PST ADC Administrators, do you have an upcoming event you'd like to promote at the Toronto meetings? If so, get in touch with Maggie Dean for details. 04 Mar 10 14:26:00 PST UPDATE: Your reservations are safe - NO hotel rooms will be canceled by AAN. If you are attending the ADC spring meeting in Toronto and made a hotel reservation through AAN, your room is safe. AAN just announced it is REVERSING the new room-cancellation policy it announced earlier today via an automated email. 01 Mar 10 15:08:00 PST NACC welcomes Diane Yang at UCLA as the newest ADC Administrator. For a current list of all the Center administrators complete with email addresses, phone numbers, and fax numbers, visit the NACC website. https://www.alz.washington.edu/MEMBER/DIRPDF/admin.pdf 04 Feb 10 13:14:00 PST Patricia Kramer, Ph.D., of Oregon Health and Science University has been appointed chair of NACC's Scientific Review Committee through spring 2012. Follow the link for more information on the makeup and leadership of NACC's committees. https://www.alz.washington.edu/NONMEMBER/PDF/nacccomm.pdf 16 Feb 10 15:23:00 PST Attention, Directors of ADCs currently funded by NIA: You have until February 22 to nominate someone for membership on the NACC Publications Committee. For guidelines and instructions, please see the email distributed February 8. 08 Feb 10 17:16:00 PST Welcome to Amanda Burden, the new Administrator for Mount Sinai! Amanda's contact information -- along with current information on all the ADC Administrators -- is available on the NACC website in the form of a handy contact sheet. Print one out for yourself. 08 Feb 10 12:58:00 PST UPDATE - Spring ADC Meeting in Toronto, April 9-10: Registration forms and preliminary agendas were emailed on Tuesday, February 2 to ADC personnel listed in the ADC directory. If you missed the email, you can request another packet by emailing naccmail@uw.edu. The deadline to register for both the meeting and the directors dinner is Friday, March 26. 05 Feb 10 12:11:00 PST Download the new edition of NACC's ADC directory, an easy-to-use resource with contact information for key personnel at all the ADCs, sorted by role (Director, Clinical Core Leader, etc.) and by Center, plus a complete alpha list by last name. https://www.alz.washington.edu/MEMBER/DIRPDF/dir.pdf 22 Jan 10 10:37:00 PST See what's new at NACC's revised website https://www.alz.washington.edu/highlite.html 11 Jan 10 15:28:00 PST Thank you for signing up for the NACC RSS Feed. https://www.alz.washington.edu 01 Dec 09 15:21:00 PST